advice

  1. A

    Seat cushion advice

    I am needing some suggestions for a cushion for my featherweight manual wheelchair. I spend 11-12 hours a day in my manual chair and my powerchair, with an additional few hours in my very comfy recliner. My time is pretty equally divided between the WC and PWC, depending on what I am doing...
  2. K

    I took this forums advice

    I have been using my BiPap everyday for anywhere from 10-12 hours each night. This was not an easy task but the longer I used the machine and as my events per hour decreased I began to wake up feeling more like myself. While that feeling doesn’t last all day and by seven pm my body begins to...
  3. M

    Advice

    Hello,I know my previous posts were accepted but they were kindly replied too individually by the people who run this form, I thank you. I was referred back to neurology however neurology have rejected my referral and advised my GP to refer me to neuropsychiatry. Please see below the letter sent...
  4. A

    Could this be ALS? Advice

    Hello, I've been dealing with muscle twitching mainly in my legs and bottom. I also have burning sensation in my quads and my right foot is cramped super bad. But I think what's most concerning to me is that my legs have hardly any strength. I feel unsteady on my feet and have so much weakness...
  5. B

    Tuition advice

    Hi everyone, my progression is slow (5 yrs from dx this month!) and I am wanting to consider getting a masters degree so that I could teach very part time. I'm a nurse with a BSN. At the same time, I do not want to incur debt that I will not be able to pay off from my income... I stopped working...
  6. M

    Son's reaction to diagnosis - advice please

    Hi everyone. Could do with some advice please. My PALS' son (not my child) has known about his illness for the last several months. He is 18. Very smart. Charming. Outgoing. Fun. Active and busy life. Etc. He does not seem to be engaging with his dad on this at all, despite his illness and...
  7. C

    Advice on getting in/out of bed safely

    I need advice how to get in/out bed. We have an adjustable bed with bed rails. I transfer from mobility scooter, making a 90 degree turn with assistance from husband into bed. We have had bumps and bruises and near miss falls. We need a new solution. I still have some strength in my arms...
  8. Tomswife

    If you ask for advice....let us know of outcome

    There are a few people, PALS AND CALS, who sometimes post a question or topic for advice. They get good feedback from several people or more....and then silence. Where did they go? Was the feedback helpful? What happened? Sometimes, the poster gets lots of really good feedback from...
  9. M

    Swollen fingers advice

    Hello, my arms and hands are pretty weak, my right hand more so than my left. My right hand fingers are noticeably more swollen, and when I bend them they feel tight because they're so swollen. I am on the computer a lot and I was thinking that they're swollen simply because they're being...
  10. N

    need for advice

    hello , my Najib and i have father who's been diagnosed with ALS recently my father had lost his right hand he can't move it any more , he cant walk without falling too , and now the other hand is going down . i have no clue what should i do to help him out . the big problem is that the...
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