Helen212
New member
- Joined
- Aug 30, 2021
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- UK
- City
- Lichfield
Hello, apologies for my post but I’m just so worried.
about 6 weeks ago I spoke to Dr about some odd symptoms.
a feeling of pressing in throat that didn’t bother me much. She suspected silent reflux and gave me omeprazole
An odd vibration feeling which goes through my left side of chest when I get up. When I breathe in. She didn’t seem worried.
pain in fingers of right hand in morning very stiff in mid knuckles but better after stretching out. She thought a bit of arthiritis perhaps.
two weeks ago things changed and I’m concerned.
I noticed a slight twitch in left thumb, two days later I start having twitching literally all over my body mainly at rest when wake up in morning and when I’m sitting. They are particularly bad in left side of back and front same area. I get them in sides of feet, soles, side of ankles, buttocks, backs of arms. Even intimate area.
worryingly when I yawn left side of my chin goes stiff and lots of twitching in left eye, neck and throat. I feel as though I’m lisping a bit and s’s are harder to sound out. I feel my voice projection is lacking. My tongue is completely scalloped around edges by my teeth. My Dr hasn’t seen this as I only noticed this last night.
I’m also experiencing post nasal drip over the last 4 months which is something I’ve never had in my life before.
Both sets of fingers in both knuckles are now stiff each morning and evening and this is worsening quickly.
I get actual kind of flinch type twitches too where whole finger moves/jolts also get this in shoulders and other areas.
Above my left knee has caused me to stumble a few times as it seems to lose power.
I’m just so worried. I was reassured when I read that fascinations don’t normally occur body wide but I’m so concerned with the other stuff too.
Dr did some bloods and all were fine I was hoping they would just show some deficiency somewhere. I spoke on zoom call with a neurologist, but at this time I hadn’t really mentioned the throat/ tongue worries as it just all seemed so ridiculous with explaining my whole body twitches.
He arranged an emg for Wednesday. Should I try and speak to him before regarding my tongue/facial worries incase the emg isn’t done in correct places?? Or will I be able to request this of Dr performing emg.
I’m so grateful for any support/information and I hope my post doesn’t appear insensitive in any way.
Would all these symptoms really have just come on within a couple of months?
Many thanks
Helen
about 6 weeks ago I spoke to Dr about some odd symptoms.
a feeling of pressing in throat that didn’t bother me much. She suspected silent reflux and gave me omeprazole
An odd vibration feeling which goes through my left side of chest when I get up. When I breathe in. She didn’t seem worried.
pain in fingers of right hand in morning very stiff in mid knuckles but better after stretching out. She thought a bit of arthiritis perhaps.
two weeks ago things changed and I’m concerned.
I noticed a slight twitch in left thumb, two days later I start having twitching literally all over my body mainly at rest when wake up in morning and when I’m sitting. They are particularly bad in left side of back and front same area. I get them in sides of feet, soles, side of ankles, buttocks, backs of arms. Even intimate area.
worryingly when I yawn left side of my chin goes stiff and lots of twitching in left eye, neck and throat. I feel as though I’m lisping a bit and s’s are harder to sound out. I feel my voice projection is lacking. My tongue is completely scalloped around edges by my teeth. My Dr hasn’t seen this as I only noticed this last night.
I’m also experiencing post nasal drip over the last 4 months which is something I’ve never had in my life before.
Both sets of fingers in both knuckles are now stiff each morning and evening and this is worsening quickly.
I get actual kind of flinch type twitches too where whole finger moves/jolts also get this in shoulders and other areas.
Above my left knee has caused me to stumble a few times as it seems to lose power.
I’m just so worried. I was reassured when I read that fascinations don’t normally occur body wide but I’m so concerned with the other stuff too.
Dr did some bloods and all were fine I was hoping they would just show some deficiency somewhere. I spoke on zoom call with a neurologist, but at this time I hadn’t really mentioned the throat/ tongue worries as it just all seemed so ridiculous with explaining my whole body twitches.
He arranged an emg for Wednesday. Should I try and speak to him before regarding my tongue/facial worries incase the emg isn’t done in correct places?? Or will I be able to request this of Dr performing emg.
I’m so grateful for any support/information and I hope my post doesn’t appear insensitive in any way.
Would all these symptoms really have just come on within a couple of months?
Many thanks
Helen