Andrewbrooks
New member
- Joined
- May 22, 2019
- Messages
- 5
- Reason
- Learn about ALS
- Diagnosis
- 04/2019
- Country
- US
- State
- NH
Hi every one. For those of you battling this illness, you have my heartfelt thoughts and prayers. I am Andy, I am 48 and going through a lot of weird symptoms right now. I'm in a continual panic attack because of it. It is rubbish and stopping me from living.
I started with pneumonia back in February and never felt better since. Even when the pneumonia was gone, I felt weaker and more tired than ever. Them the numbness started in the face and arm which sent my to ER for a cat scan. Nothing to see. Sent home after HR and BP normalized. Then I started to find it difficult to walk, heavy legs with numbness around the kneecaps and thighs. Poor balance came concurrently and feeling vague, detached and lightheaded.
The insomnia started soon after, couldnt sleep without trazedone, now I am on ativan and effexor.
Then the shakes. All over my body, diaphragm is especially distressing as it affects breathing. I also cant sleep because my brain "pushes" me out of it. Pressure builds as I am at the point of falling asleep, and I awaken panicked with bad fasciculations throughout my body. Anyone else get this? It seems pretty rare and not like hypnagogic jerks. My body is numb, tired and I have lost 10-15lbs in 3 months. My appetite is poor because swallowing is Difficult and I feel like I'm choking sometimes. Got a brain/neck MRI and brain showed nothing. Neck showed some cervical myelopathy and stenosis. Also had an Emg and nerve conduction study which were also unremarkable. He did note brisk reflexes which were unremarkable. I note that my first fascics did not appear until after his emg. He only did one arm and one leg, did he miss it?
I would appreciate your feed back. Petrified its ALS, MS or CJD ( I'm from the Uk).
Thanks in advance. You are good people.
Andrew
I started with pneumonia back in February and never felt better since. Even when the pneumonia was gone, I felt weaker and more tired than ever. Them the numbness started in the face and arm which sent my to ER for a cat scan. Nothing to see. Sent home after HR and BP normalized. Then I started to find it difficult to walk, heavy legs with numbness around the kneecaps and thighs. Poor balance came concurrently and feeling vague, detached and lightheaded.
The insomnia started soon after, couldnt sleep without trazedone, now I am on ativan and effexor.
Then the shakes. All over my body, diaphragm is especially distressing as it affects breathing. I also cant sleep because my brain "pushes" me out of it. Pressure builds as I am at the point of falling asleep, and I awaken panicked with bad fasciculations throughout my body. Anyone else get this? It seems pretty rare and not like hypnagogic jerks. My body is numb, tired and I have lost 10-15lbs in 3 months. My appetite is poor because swallowing is Difficult and I feel like I'm choking sometimes. Got a brain/neck MRI and brain showed nothing. Neck showed some cervical myelopathy and stenosis. Also had an Emg and nerve conduction study which were also unremarkable. He did note brisk reflexes which were unremarkable. I note that my first fascics did not appear until after his emg. He only did one arm and one leg, did he miss it?
I would appreciate your feed back. Petrified its ALS, MS or CJD ( I'm from the Uk).
Thanks in advance. You are good people.
Andrew