D
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Hi, I’m a 43 year old male and for the last two years I’ve had a worsening progression of symptoms. It all started with random twitches in my left pectoral muscle, tricep and lat. It progressed to a loss or range of motion and visible size difference in my left arm (I’m left handed, so it should be stronger/bigger if anything). Doctors shrugged this off as an after effect of lingering disc issues after I had a pinched nerve in my neck which was a fair assessment at the time, though a neurosurgeon said that my symptoms didn’t follow the nerve root for C6/7 which is where the MRI showed a disc issue.
The tl/dr of the rest of my story is that I’ve had a progression of muscle twitches, spasms and tightness that’s spread to my hands feet and legs (mostly right leg). I get tired easily, and my symptoms get worse towards the end of the day. It’s been a pretty steady progression of symptoms for the last few months.
My right arm seems to be mostly spared though I’m getting some fasiculations there too.
I’ve been on a merrygoround of medical diagnoses, from cervical AND lumbar radiculophathy (on both sides) to functional neurological disorder, to cramp fasciculation disorder and a culmination of all three at the same time. I’ve had three separate EMG studies done, which I’ve attached to this post. The first was done on December 2023 just of my left leg, second was more extensive and done April of 2024.
I put my EMG’s through the most advanced AI models and they consistently came back with a high probability of PMA or a slow form of ALS, since I have chronic denervation, fasiculations and increased insertional activity but not PSW’s or fibs. The progression seen on my EMGs is noticeable though not dramatic. I take the AI assessment with a grain of salt since it’s not a doctor and I can’t take medical advice from anyone but a doctor but I do think it at warrants at least some concern (my wife differs on this).
My question is, has anyone seen a case like mine that ended up being a slow form of ALS, or does this seem benign? What puzzles me is the explanation of radiculopathy in so many muscles I’ve never experience nerve pain, and that chronic denervation isn’t present in CFS (only fasiculations).
The tl/dr of the rest of my story is that I’ve had a progression of muscle twitches, spasms and tightness that’s spread to my hands feet and legs (mostly right leg). I get tired easily, and my symptoms get worse towards the end of the day. It’s been a pretty steady progression of symptoms for the last few months.
My right arm seems to be mostly spared though I’m getting some fasiculations there too.
I’ve been on a merrygoround of medical diagnoses, from cervical AND lumbar radiculophathy (on both sides) to functional neurological disorder, to cramp fasciculation disorder and a culmination of all three at the same time. I’ve had three separate EMG studies done, which I’ve attached to this post. The first was done on December 2023 just of my left leg, second was more extensive and done April of 2024.
I put my EMG’s through the most advanced AI models and they consistently came back with a high probability of PMA or a slow form of ALS, since I have chronic denervation, fasiculations and increased insertional activity but not PSW’s or fibs. The progression seen on my EMGs is noticeable though not dramatic. I take the AI assessment with a grain of salt since it’s not a doctor and I can’t take medical advice from anyone but a doctor but I do think it at warrants at least some concern (my wife differs on this).
My question is, has anyone seen a case like mine that ended up being a slow form of ALS, or does this seem benign? What puzzles me is the explanation of radiculopathy in so many muscles I’ve never experience nerve pain, and that chronic denervation isn’t present in CFS (only fasiculations).
