Riggo
New member
- Joined
- Sep 25, 2021
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- Modesto
A year ago I started having tightness in the muscle in my back between spine and shoulder blade on right side.
Also tingling down both legs that happened more and more often as time went on. If I rode a bicycle, when I finished the tingling was extremely intense.
About 9 months ago I started feeling numbness in my feet, but I still had feeling, they just felt numb. I also started having fasciculations, first in my calves. Now calves, thighs, shoulders, biceps, triceps.
About 6 months ago the tingling was dissipating but suddenly my thighs both felt fatigued. Harder to go up stairs, but no clinical weakness, if I understand that term. Now tingling is gone, numbness is sporadic, fasciculations happen multiple times a day, thighs are still fatigued (still harder to go up stairs), and my fingers now get tight. More on the right hand. Sometimes they actually look swollen, and even when they don’t look swollen they feel that way. I also had a terrible cramp in the back muscle on my right side between my shoulder blade and spine for no apparent reason about a month ago and it still hasn’t loosened up.
I’ve seen a neurologist and had every test possible. Everything is normal. Brain mri clean. MRI’s of spine were clean. Blood tests normal. The neurologist actually said about my symptoms, “sometimes this is how als presents”. Made me nervous. I showed her videos of my fasciculations. I had an emg in which the neurologist only tested the thighs inner and outer muscles and she said it was normal. She referred me to UCSF and said, “I hope you don’t develop als”. At my video appt with the neurologist at UCSF the neurologist said let’s wait and see and I have another appt in 4 months. I read the “read before posting” on this forum and probably wouldn’t have posted here because of the tingling and “numbness” except for the neurologist saying this is how als presents sometimes. Thanks so much for taking the time to read this. I appreciate it so much. Oh I’m 50 year old man.
Thank you, thank you, thank you.
Also tingling down both legs that happened more and more often as time went on. If I rode a bicycle, when I finished the tingling was extremely intense.
About 9 months ago I started feeling numbness in my feet, but I still had feeling, they just felt numb. I also started having fasciculations, first in my calves. Now calves, thighs, shoulders, biceps, triceps.
About 6 months ago the tingling was dissipating but suddenly my thighs both felt fatigued. Harder to go up stairs, but no clinical weakness, if I understand that term. Now tingling is gone, numbness is sporadic, fasciculations happen multiple times a day, thighs are still fatigued (still harder to go up stairs), and my fingers now get tight. More on the right hand. Sometimes they actually look swollen, and even when they don’t look swollen they feel that way. I also had a terrible cramp in the back muscle on my right side between my shoulder blade and spine for no apparent reason about a month ago and it still hasn’t loosened up.
I’ve seen a neurologist and had every test possible. Everything is normal. Brain mri clean. MRI’s of spine were clean. Blood tests normal. The neurologist actually said about my symptoms, “sometimes this is how als presents”. Made me nervous. I showed her videos of my fasciculations. I had an emg in which the neurologist only tested the thighs inner and outer muscles and she said it was normal. She referred me to UCSF and said, “I hope you don’t develop als”. At my video appt with the neurologist at UCSF the neurologist said let’s wait and see and I have another appt in 4 months. I read the “read before posting” on this forum and probably wouldn’t have posted here because of the tingling and “numbness” except for the neurologist saying this is how als presents sometimes. Thanks so much for taking the time to read this. I appreciate it so much. Oh I’m 50 year old man.
Thank you, thank you, thank you.
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