- Sep 13, 2021
- DX UMND/PLS
I am operating under a "might be PLS but, is definitely a MND" diagnosis. This has been going on and progressing for 2 years. About 4 months ago I started having a burning, tingling sensation in my inner left thigh (90% of symptoms are in left leg) and the same area on the right but, to a lesser degree. The pain is intense and then goes away. I describe it as being touched with a red hot cast iron skillet but, maybe I'm overly dramatic! My Neuro said it wasn't a PLS symptom and threw anti seizure meds at it. That didn't help and now when I dry my legs after a shower I get the same burning feeling the whole length of both legs. Also, I'm starting to notice the same feeling in my lower belly and pelvic area when I stand up from sitting. The Neuro's answer was "try this other anti seizure med"! I have always had an extremely high pain tolerance but, this is getting bad. I cannot find anything that describes this and it is really starting to wear on me. Would love any input!