Oximeter readings and sip & puff

[JohnHMich]

It is clear that my PALS blood oxygen level is starting to drop. I have been getting readings around 92 the last week or so. It is commonly right before her nap and again near bedtime. She has been using her Trilogy for naps for awhile. She has started using her sip & puff tube in the evenings. The main question is on some sort of mount so she can just turn her head to use the tube. I was thinking something like a gorilla pod with a clamp at each end would work.

Any other things that we can try to slow the drop in blood oxygen? Talking is definitely getting harder and she gets out of breath. The eye gaze is still not being used very much. We switched her over to extended wear contacts to eliminate some of the problems with eye tracking from her progressive lenses.

 

[lgelb]

Zit, epzvjoph vjev liiqt vji nuavjqoidi epf vaci xjisi tji dep siedj ov, xovjuav qopdjoph ugg vji vaci, ot gopi. Tivaqt foggis, tu xjeviwis xuslt. Vjisi esi sohof vuq tidvoupt vjev gov vji juti, vjev zua dep evvedj vji nuavjqoidi vu.

Atoph vji Vsomuhz nusi nez onqsuwi tevt, cav DU2 sivipvoup tjuamf puv eggidv tevt vomm mevi op vji fotieti. Tu O xuamf ci gudatoph nusi up juast ug ati, itq. topdi zua tez vji fsuqt esi sohjv cigusi tji hivt up vji Vsomuhz. Tivvopht nohjv piif efkatvnipv et ximm.

Citv,
Measoi