My symptoms, starting to get worried, need advice, ALS?

[Lostmint]

For Info: I am Female, 20 Years old

My first symptoms were excessive sweating, burning/tingling tongue, feeling that I had a lump in my throat (I had 2 days were my throat hurt a lot while swallowing but that went away, lump feeling stayed), feeling like I don’t get enough air, weak legs, excessive saliva

Then the twitching started. I have it mostly in my left leg and foot, but sometimes in other areas as well. I started feeling weaker in general and just weird. One day I noticed that my left hand felt much stiffer than before. I kinda got scared and went to the ER.

Things that got done: MRI Brain (Clear), Spinal Tap (Clear), SEP and VEP (Clear)

Things they found: Severe Vitamin D Deficiency, Vitamin B12 Deficiency, exhausted footclonus and hyper reflexes (on both sides)

I got out of the ER after a few days with no diagnoses. They told me to took the vitamins and that should help. I have now for a few weeks, but I still feel worse every day.

When I got out of the ER I got very severe headaches for 2 days (I even threw up one time) and very severe upper back pain (when I moved I had a sharp pain in my back) but that went away after 2-3 days.

My symptoms now: excessive sweating, high pulse, lump in throat, tingling/burning tongue, excessive saliva, upper back pain, fatigue, perceived muscle weakness (not clinical), muscle twitching, muscle cramps at different parts of my body, sometimes sensory issues like burning and tingling but that’s rather rare, feeling like I don’t get enough air, getting shivers a lot even though it’s not cold and the most worrying symptom for me that started this month is that suddenly my whole body feels stiff and hurts and aches. It feels so weird it’s hard to describe. It’s also not just in the morning. It’s 24/7. My muscles feel so tight everywhere. I also now have a weird buzzing feeling everywhere. My body also makes a lot of cracking sounds now when I move. I feel like it’s hard to lift my legs/feet which makes walking difficult. (I can still stand and walk on my calves or tippy toes)

I know that statically ALS is very unlikely for me. My age, my gender, my family history all speak against it. But since I got these symptoms I just can’t stop worrying. I feel like I get worse everyday. I can’t sleep. I lay down, breathe and my throat and my back start twitching. It’s just all so weird.

I’m wondering if I should do an EMG. I just don’t know what’s going on. I never had any health anxiety before this. I just feel like something is very very wrong. I used to do a lot of activities and do 10.000 steps a day but I just can’t anymore.

My hopes are that this may be Long Covid. I had Covid in Late February and the symptoms started Early April, but I feel like that with long covid you have good days and don’t feel progressively worse but I don’t know.

I haven’t had choking issues or speech issues. I haven’t lost weight, I actually gained weight because I started eating a lot because this stresses me out.

 

[ShiftKicker]

Hello-

Please make sure to read here: Read Before Posting

You may also find this of interest, given you state you had a sore throat, which is a viral symptom: Covid19 and Neurological Symptoms

It seems as though you are aware all of the things you list are not associated with ALS already. The person to assess whether an EMG is warranted is your doctor. While your symptoms must be very worrying and life affecting, this is not how ALS looks. You will have to keep working with your doctors to figure out what is going on and get some symptom relief.

Please take care.

 

[Clearwater AL]

I’m going to go here again, something others seem not to take note of.

We’ve had many posters lately in their 20s terrified of having ALS from
their immediate Dr. Google searching. What they (you) don’t search is
how rare for someone in their 20s to be diagnosed with ALS. Being I
have signed numerous W2-Gs in my casino days… I know about odds.

The odds of someone in their 20s finally being diagnosed with ALS
is 6 digits (000,000) + against it. It’s rare as rare can be in a disease
that is still considered compared to all other somewhat rare diseases.

And, very rare over many years of someone in their 20s being diagnosed
with ALS… were male.

We recently have one (in 20s) claiming, but it is still left with many
unanswered questions to really establish a confirmation of ALS.

Please work with your doctors and push a several stacks of chips in
on the bet you do not have ALS. You’ll win that hand. I wish I could
have won that hand.

 

[Lostmint]

Thank you. This helped me ease my mind a lot. It’s just the hyper reflexes and the clonus that kinda scare me. But thank you for bringing it to my attention how unlikely ALS for me actually is.