Aaronmandevill
Active member
- Joined
- May 7, 2022
- Messages
- 73
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- TX
- City
- San Antonio
I am currently active duty Air Force male 36 with a history of lymphoma (5 years remission). I received several different cerebral chemo therapies. Middle of last year I went in for difficulty swallowing pills and saliva. They did an endoscopy and found nothing, but I did fail the barium pill swallow test. March of this year I noticed fasciculation in my calves which have increased in intensity to the point of causing trouble with sleep. They have also moved to my feet and thighs. With my history they did full blood (all levels good) and brain mri (all good). I am currently scheduled for c-spine mri and EMG, but they are 6 weeks out on appointments. Also my neurologist told me that he would never diagnose ALS without muscle weakness. I have heard starting medication early can really help in disease progression. It’s hard to get a second opinion working through military channels. Would it be worth it to get a second opinion from an ALS specialist out of pocket? They range about $500 for a consultation.
I am very grateful for this community and many things I have read on here have already lowered my anxiety on a number of unknowns I had concerns about, so thank you so much in advance.
I am very grateful for this community and many things I have read on here have already lowered my anxiety on a number of unknowns I had concerns about, so thank you so much in advance.