How Long Has Everyone Had Als ?

HOW LONG HAS EVERY ONE HAD ALS ????


  • Total voters
    26
  • Poll closed .
Status
Not open for further replies.

BLAIRHANNER

Member
Joined
May 6, 2007
Messages
16
Reason
Learn about ALS
Country
US
State
Georgia
City
Atlanta
I just wanted to know how long everyone has had ALS ?
 

Omar

Distinguished member
Joined
Apr 13, 2007
Messages
138
Reason
PALS
Diagnosis
08/2006
Country
BE
State
Belgium
City
Brussels
hey Blairhanner,

you want to know how long everyone has officially ALS after the diagnoses? cause I guess that lots of us get symptoms years before the diagnoses.

Omar
 

Rhonda

Distinguished member
Joined
Sep 12, 2006
Messages
108
Reason
PALS
Country
US
State
GA
City
Mableton
My symptons started April 06 and I was diagnosed June 06. So I've had it 14 months.
Rhonda
 

BLAIRHANNER

Member
Joined
May 6, 2007
Messages
16
Reason
Learn about ALS
Country
US
State
Georgia
City
Atlanta
Hi Omar,

SO how long have you had ALS ? And how are you doing ? Talk with you soon .
 

Poco

Active member
Joined
Jan 20, 2007
Messages
49
Reason
PALS
Country
US
State
Or
City
Bend
Dick has been diagnosed less than a year and was given 1 to 3 more months to live. He is on hospice. Very fast moving.
Phyl
 

hboyajian

Distinguished member
Joined
Oct 31, 2006
Messages
267
Reason
Lost a loved one
Country
US
State
Washington
City
Vashon
My dad had symptoms that we now think could have been ALS for about 4 years (balance problems). More extreme symptoms (loss of back, neck and leg muscle strength) began 2 years after that. He was diagnosed with ALS after developing bulbar symptoms (could not swallow solid food) only 3 months before he died.
 

ChrissyWho

Member
Joined
Apr 24, 2006
Messages
21
Reason
Loved one DX
Diagnosis
03/2006
Country
US
State
California
City
Moreno Valley
My husband had symptoms for about four years. He was diagnosed in April 06. He lost the battle December 06. I hate this disease!

Chris
 

sarah

Member
Joined
Jun 11, 2007
Messages
19
Country
US
State
Oregon
City
North Bend
3 1/2 years now

My husband had symtoms for a couple of months before he was diagnosed in september of 2003. So he has had it for atleast 3 1/2 years now. He cannot move much, maybe just a slight movement with his hand or leg, or if he is sitting up, he can shift his body left or right a little. His speech is almost gone, it takes a little time to get what he is saying.
Sarah
 

Omar

Distinguished member
Joined
Apr 13, 2007
Messages
138
Reason
PALS
Diagnosis
08/2006
Country
BE
State
Belgium
City
Brussels
I have been diagnosed in August 2006
but I have had symptoms for 2 years now
By the way Jimercat thanks for the link it is an amazing organized site.
wow I love it ;)

Omar
 

brent

New member
Joined
Jun 14, 2007
Messages
4
Reason
PALS
Country
US
State
wa.
City
burien
i was diagnosed may22 06 but had ben having problums with the hands and arms for at least a year befor brent
 

Amelia

New member
Joined
Jul 16, 2007
Messages
3
Reason
PALS
Country
CA
State
Ontario
City
Ottowa
Thinking of you

It's wonderful to read that people live strong despite this disease. This website is truly inspirational- and everyone here warms my heart :)

I'll pray for the patients and caregivers as much as I can this week- I hope for great things to come to us all!
 

Lorie

Senior member
Joined
May 17, 2007
Messages
546
Reason
Loved one DX
Country
Uni
State
Alabama
City
Mobile
Hi! Amelia,
My brother Timothy had symptoms for seven years. Suspected three years ago. Dx two years and five months ago. Total=Ten Years and Five Months. Atrophy in arms and hands June 06.

Like Omar said, you can have the symptoms for years. The Neuros. just can't get it until a certain point. They gave Tim the sam DX I have before they DX ALS.

Believe me, I dont want ALS. Its just frustrating what you are seeing and feeling and you try to tell the Doc.s, they just brush it off. After I go for more EMG and NVC this month. I am going back to my Neuro. one more time. And then I am brushing them off! I will keep seeing my Internal Doctor. She is very thourough.

Lorie
 

guwainengle

Distinguished member
Joined
Jul 9, 2007
Messages
112
Country
US
State
PA
City
Duncansville
How long did everyone start having symptoms prior to seeking a medical doctor-- and was the doctor a neurologist or an ALS specialist? And what was the first things the doctor tried to say they thought the problem was-- I know .. alot of questions-- but I would like to see how they correlate with my GP and Neuro statements. Also I am seeing a Holistic dr today to see if there is any optional treatment for the cramps and twitches although I hav enot been diagnosed yet-

Thanks- G
 

MtPockets

Very helpful member
Joined
Jun 1, 2006
Messages
1,528
Reason
PALS
Diagnosis
05/2006
Country
US
State
Ms
City
Gulfport
I was DX May 11, 2006, but had symptoms for 2 years before finally got the DX. Tests were mri, blood work (which showed elevated cpk,3000), emg, ncs, etc, finally a biopsy of muscle tissue.
The spasms came first and gp sent me to a Neurologist right away. After a year of the spasms begain to show significant muscle loss. Loss of ability to walk and keep balance. I have limb onset. It began in my feet, now has moved all the way to my neck after about 3 years.

God Bless
Capt AL
 

patricia1

Very helpful member
Joined
Sep 18, 2006
Messages
1,149
Reason
PALS
Diagnosis
7/1999
Country
US
State
newjersey
City
lopatcong NJ
I have ALS 8years Ck is only 210 and thats only this year before that it was normal pat
 
Status
Not open for further replies.
Top