Caregiver focus groups

Nikki J

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Joined
Mar 22, 2012
Messages
10,683
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
Through their caregiver focus groups, I AM ALS aims to understand the most critical non-medical concerns of people who care for someone with ALS. We are seeking to learn more about critical concerns of family caregivers, including their experiences with accessing and utilizing home healthcare.
Focus Group Times (in Central time)
Wednesday, September 1 — 12-1:30pm
Wednesday, September 1 — 5:30-7pm
Thursday, September 2 — 11am-12:30pm
Tuesday, September 7 — 12-1:30pm
Wednesday, September 8 — 5-6:30pm

 

Cathy H

Member
Joined
Oct 7, 2020
Messages
11
Reason
PALS
Diagnosis
09/2020
Country
US
State
FL
City
Bartow
i don't see any links to the focus groups. how does someone participate?
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
10,683
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
You fill out the form in the link. It is for CALS only though
 
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