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  1. A

    hi out there

    hi my names chris i live in australia,,,recently ,over the past 6 months i have gradually losing my ability to speak,,,,its strange as i lost my wife to cancer a few years ago and have developed a website,with forums etc for widowed people,,,i find myself now here needing some communication with...
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    Speech-Language Pathology Student seeking info about ALS

    Good Morning, My name is Beth, and I'm currently pursuing a masters degree in speech-language pathology. I am taking a course on motor speech disorders, which focuses on diseases such as Parkinson's, Amyotrophic Lateral Sclerosis, and Cerebral Palsy. Since I have little experience with these...
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    stem cells,.gene therapy 0 times!, and Gilenya

    Iwould suggest to you that ALS TDI Seems to focus mainly on traditional drug therapy. It might be that drug therapy will become yesterday's solution. I was on Gilenya for over 3 months with no positive indication, I hope ALS TDI has rolling data reporting so that the trial can be terminated...
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    Assisted living and DME

    Hi. I am a PALS, diagnosed 4 1/2 yrs ago. I have leg onset, but have managed to live on my own using a rollator, and having help with cooking, cleaning and laundry twice weekly. I am at the point now that I need more help and a power wheel chair. Since I have no primary caregiver, or family who...
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    Questions and Symptoms help please

    Hello all. I was recently diagnosed with ALS. I would like some advice and information on some of my symptoms and if anyone can help me out. Some background information- Some of my symptoms were; speech where I could only whisper and talk very quietly, feeling in my hands and my right arm felt...
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    Symptoms and Questions

    Hello all. I was recently diagnosed with ALS. I would like some advice and information on some of my symptoms and if anyone can help me out. Some background information- Some of my symptoms were; speech where I could only whisper and talk very quietly, feeling in my hands and my right arm felt...
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    Symptoms and Questions

    Hello all. I was recently diagnosed with ALS. I would like some advice and information on some of my symptoms and if anyone can help me out. Some background information- Some of my symptoms were; speech where I could only whisper and talk very quietly, feeling in my hands and my right arm...
  8. R

    squeamish? feeding tube? yikes

    Hi All It's been so long since I's posted here. My husband is coming upon his 2 year "diagnosis" anniversary and we are just now going into a wheelchair and his exhaustion is starting to really affect daily life. He is no longer working and life is getting slower. He has been having more...
  9. U

    Time for a quick update...

    I have now had 2 visits with a neurologist and referred to the motor neuron specialist I have tried to see for a couple of years so things are moving along. I totally weaned off of the methadone and many problems seemed to have lessened. I went from a wheelchair to walking 1-3 miles a day. Spent...
  10. P

    Going through the motions

    Hi everyone,been a year since I posted .Had the heavy metal test,came back high , 90% ,in lead ,cadmium,50%mercury,nickel,uranium, Volatile solvents were high as well,95%tile Benzene,Ethylbenzene,Toluene,Styrene,and then the NonDioxin like Polychlorinated Biphenyls,74,138,153,180.Been doing...
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