travel

  1. swalker

    Lithium Battery for Magic Mobility X4

    I am not sure where to put this, so will put it here. Mods, please feel free to move this to a more appropriate forum. As some of you probably read in the PALS checkin post, last Sunday we installed a home-built lithium battery pack in my Magic Mobility X4. I will provide some details in this...
  2. V

    First ALS Clinic Visit

    Yesterday we had our first ALS Clinic visit. I think my PALS was overwhelmed by all of the people. He says he is very tired. He was diagnosed 3 1/2 years ago but was pretty much on a plateau until about 2 months ago when he seems to have fallen off a cliff. For the first 3 years his left...
  3. S

    We are stuck and need advice

    I have had 2 accidents now and I just dont understand how it's not ALS related. Both now I have been in the bathroom on time but as soon as I see the toilet I cant hold it anymore and it all comes out. Is this normal? Plus my hair is so greasy and my hair on my head and eyelashes are getting...
  4. S

    No diagnosis - Nervous after 6 months

    I’m concerned about my symptoms I’ve been facing them for just under 6 months. Let me start out by saying that my life is very stressful. I manage about 500 people all over the world. The ups and downs of corporate politics are very impactful and my stress level in the last 6 months has been...
  5. K

    I am terrified. Haven't had much internal peace in the last month.

    First, I want to thank everyone that takes time out of their day to help people in this forum. After doing a lot of research and reading on this forum I have decided to post a thread, seeking help. The truth is that in the past few weeks all I can think about is ALS. As time goes on the more...
  6. P

    Seeking Permobil F3 Wheelchair

    Hello, I am hoping to find a used Permobil F3 or F5 wheelchair for my father soon. His current wheelchair does not have a tilt or rise feature which he will soon need. I live in Oklahoma, but am able to travel for pickup. I saw that soonerwife was selling one a few months ago, but I'm...
  7. J

    Judgement day coming up...

    G'day everyone. So it's coming up to a year now since I've first been on here - you can read my following threads (though I really don't advise this): Another "Bulbar ALS?" Thread Ongoing ALS concerns... I am now a 30-year-old MD currently living in Australia. I know on my last thread I said I...
  8. Chincoteaguer

    Back home from hospital

    I apologize for the length of this post but I hope it might help others who have to take their PALS to the ER. We were in the hospital from Thursday morning until noon on Saturday. As I have posted previously the trip to the ER was recommended by our health care nurse based on a false oxygen...
  9. J

    Questions

    I know I’m sure I am over reacting. And I don’t want to waste anyone’s time. I won’t continue to post here if everyone agrees this isn’t what I’m dealing with. Every now and then I will randomly feel a dull ache sometimes in my shins and calf muscle and will travel up to my upper legs and...
  10. scaredwifetx

    Steve's battle will be ending the next few days

    Hi Everyone, I know its been awhile since I have posted. I just felt that today was right. The love of my life has decided that the time has come to end the fight. He's been an amazing fighter for over three years. He dealt with this disease with far more postivity, and courage then I ever...
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