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As published in the Henderson, KY paper The Gleaner: Brenda Pitt was in the middle of living her extremely busy life when she received a diagnosis that -- briefly -- stopped her in her tracks. "I have what?" she asked the specialists at Indiana University Medical Center on June 3, not sure she...

Hi everyone. I have been on and off this forum for over a year. My journey began almost 2 yrs ago. At the time I was 35 active, unstoppable, full time charge nurse in busy ER, student, mom of 3, wife to the greatest guy ever. Started getting headaches which I chalked up to working nights and...

I haven't been saying much here of late--just visiting and reading. Gerald did get to RIC. Orthotics gave us some braces to try to help the contractures. Since he can't talk, I can only hope that the braces aren't hurting. We won't know for a while if the bracing is helping. Gerald had a real...

on thursday i started my intensive physio therapy. i have sarah my usual occupational pt who has been coming to my home for 2yrs. but someone else is going to do the extensive physio twice a week for 6wks now so its not too much. i have a set of 10 exercises to do,some in parts(starting at A and...

Hello, this is my first post. I am a 26 yo male, law student, and over the past 3 or so months I have gone through an extremely stressful period with respect to my health. I will admit I am worried about ALS, as well as many other neurological conditions, and will also admit to being a slight...

Hi there I am a student in a journalism class in college and I've got an assignment to interview someone suffering with a problem day-to-day. I chose ALS because my grandfather was diagnosed and passed away in 2005. I interviewed a very compassionate man full of life, he was unable to speak...

I am a student at Worcester State College and am doing an assignment for journalism. I would love to interact with a patient or their spouse/any family member to get some insight on their daily lives, struggles, anything else they'd like to share with me. I chose this topic because my...

Hello:-D, I am a new member, I joined 2 weeks ago but started my first posts today. It's been wonderful reading through your posts and gaining a better understanding of what ALS means to people and how it has affected their life or their loved ones' lives. Thank you for sharing your words of...

Just about a month ago I began to have muscle twitches periodically, and they have become somewhat constant. They are seemingly random and a few may reoccur in the same area for a couple days but then begin in another. I get them in my legs and thighs mostly but not really in the same place, and...

Hi there all, before i post the main body of my enquiry i thought i'd just explain where i am coming from and who i am. I am a final year student nurse training within the UK and currently placed out with community nurses. I have very limited knowledge of MND and as of only a few days previous...