story

  1. S

    Scared to death, again

    I posted on this forum twice already about my symptoms. Long story short, for about one year I feel mild weakness on my dominant side (right leg and arm). I feel my right leg heavier when I step and feel objects heavier with my right arm (the dominant one). Also, my right calf and arm seem a...
  2. K

    My Husbands Worried.

    Hi all, thank you for allowing me to join and be able to post here. I've been on this website a lot since October 2017 and I'll explain why. My husband, who is 31 years old began getting some twitching in his muscles in or around October 2017. He went to his GP for around two visits before the...
  3. E

    Not a story of hope but a hopeful poem

    Not a story of hope but a poem that I find strangely hopeful, all the more when the poem is about 5 men who are shot to their deaths. Also a poem that vindicates beauty even, especially when we are confronting death: 1. They take them out in the morning to the stone courtyard and put them...
  4. A

    My story

    Hi all. Here's my story. Please let me know what you think. Thanks in advance. I am 55 female. Started having finger, hand, and toe cramping at least 17 years ago. I also had body wide twitching. Was worried cuz I was due to have a kidney transplant surgery with general anesthesia and was...
  5. lgelb

    Steve Gleason to receive Congressional honor

    Story is here.
  6. J

    muscle weakness, twitching, cramping and fatigue... ALS?

    Hi Everyone, I am wondering if any of this sounds familiar.. 38 y/o female. Previously VERY active, trail running, mountain biking, more energy than I knew what to do with. Weekends, you could find me hiking (10+ hours, overnight hikes with a full pack), alpine mountain biking (4+ hours), and...
  7. H

    Question on progressive development

    Reading this forum I don't feel right listing up "my story" instead I have a question which I have tried the answer myself, while having little success I hope someone can help me along. If you get ALS symptoms like weakness, twitching, cramps in a shoulder and foot. Will it always be...
  8. R

    USC inMotion Article

    Hi everyone, I wanted to share an article about my son (Ashton 10) and I (Diagnosed 9/7/17) that USC did on our story this month. I think it came out really cool! Link to the video Link to article inMotion Fall 2018 Shaun
  9. N

    I feel like i lost connection with my own body

    Marry Christmas Everyone! Sorry for the long post and bad English. To know my story you have to know a bit of my background. I was born in the Congo and lived there until age 7. I just turned 30 and things haven't been going to well personally to be honest. As you may or may not know, Congo...
  10. Nikki J

    We came in second!

    For the most googled health concern this year. We meaning ALS not the forum. I am sure some were researching after seeing a story about it affecting or killing a famous person or because someone in their real life was affected somehow. Still I think there must have been plenty of the other...
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