risk

The Dr. and RT suggest I wear oscar(myBipap) during the flight to Niagra falls,it is about a 4hour flight.I phoned Westjet with whom we are flying and they don't have elecrical oulets (Air Canada Does)it is O.K. to take a battery on board if it is comparable to the oxygen ones. I packed up Oscar...

ScienceDaily (Sep. 9, 2009) — Michigan Technological University researchers have linked three genes to the most common type of amyotrophic lateral sclerosis (ALS), generally known as Lou Gehrig’s disease. Professor Shuanglin Zhang leads the team of mathematicians that isolated the genes from...

My husbands father died of MND years ago & since losing a family friend recently to MND & also since the addition of a baby to our own family I thought it best that I research the level of hereditary risk of MND. I am however faced with such contradicting information about whether either my...

Hi everyone, I had a clinic visit yesterdayand came home discouragaged and with a decision to make. I was diagnosed a month ago,my breathing laying down was between 35% and 40%, sitting up 72%, I since have a bipap and my results yesterday was sitting up58% a big drop, it seems to be going...

How will this affect you? From the MDA newsletter: Medicare Benefit Threatened Power wheelchair users urged to speak up to preserve first-month purchase option People who receive a power wheelchair through Medicare may lose the option to buy the chair immediately, under a proposed change to...

Over and over again for months now, kept closing the window as soon as I saw what this was about. But decided today that I would say hello. So "Hi!" First off would like to say that I feel awful for anyone that has been diagnosed'ed with ALS or is concerned about it for their own reasons. My...

I am so glad that I have found this supportive and informative site/forum. :-o Gigantic THANK YOU to all of you! My husband who just turned 56 is being tested for ALS. I noticed about 6 months ago that he was constantly clearing his throat, slight issues with drooling and that his voice...

I'm really scared. Not for me, but for my 79 year old father-in-law, who has had problems with the same leg on and off for years. He's had both circulatory problems as well as nerve pain. 5 years ago was my last time of intense worry, when he was having pain in the leg. They never did figure...

Hi guys. It took awhile but I did finally recieve the report from University of Colorado and will post some of it for help interpretting for those who feel comfortable helping me interpret. I am going back July 9th to see her again as per my local neuro. I did finally quit my job, my...

Hi I have looked at this site before, but have been posting on BFS sites for awhile. I started twitching in November of 06, 2 years and 5 months ago. At first it was just twitching, started with a twitching toe, then more twitching toes then completely diffuse fasciculations, i.e. twitching...