paralyzed

hi all... seems like this little bit of science escaped attention on the forum. (PhysOrg.com) -- When the Human Genome Project was complete, DNA bowed out of the limelight and gave way to RNA as a major player in genetic regulation. Now, findings at Rockefeller University mirror this...

Hello - A family member has been losing the ability to walk and balance over the past 8 months. She has seen two neuros, had MRIs of everything, and an EMG. She has been referred to an ALS specialist but her doctor has said "I am not at all sure it's ALS". He just doesn't know what else it...

My mom has advanced ALS and I have learned that things can always get worse. I am not my mom's primary caregiver, in fact I don't do that much hands on stuff with her because I have a 3-year-old and a 9-month-old. I feed her when I'm around, buy her foods and drinks she likes, take care of phone...

Hi Everyone, I have been wondering a lot about this, and am hoping it's not too uncomfortable a topic, but if you can't ask a tough ALS question here then where can you? :smile: It's about longevity. The 'average' survival time post-diagnosis is 3-5 years. But, is that only for PALS who do...

First, I would like to say thank you to all of the helpful postings I have read in the last couple of weeks. I happened upon the site when I looked up hyperreflexia and have been visiting everyday since. My only knowledge of ALS previously was of one of my favorite high school teachers who was...

I had fluoroscopy this week showing at least half my diaphragm is paralyzed. I will be having a tracheotomy Friday and use a ventilator at night. My pulmonary specialist feels this will help my daytime functioning. Have any of you had any experience in this area? I would be interested in hearing...

This was on my "news" home screen ... don't know who to cite ,,, I believe Hawking developed MND in his 20s? "Cosmologist Stephen Hawking will retire from his prestigious post at Cambridge University next year, but intends to continue his exploration of time and space. "Hawking, 66, is...

Let me start by saying I have been reading here for a week or so and finally decided to post. My husband is 51. A few years ago he had pneumonia really bad, and a year later had it again. The pulmonologist pointed out to him recently that it is not normal to have pneumonia even once, let...

Hi everyone My mom was a member here. I am not sure what her screen name was. Maybe it was LindaB? She was an active writer in March - June. She found out she had ALS in March and sadly died on August 8th. She had Bulbar onset with 1st symptoms appearing in summer 07. She was diagnosed with...

Hi. I told my story breifly in the bottom intro part. Here's the short version. I go by Josi in real life. My mother died in 99, caused by liver failure from some form of sclerosis which she was diagnosed with days before her death. My father never remembered the name as he .. is just...