early

  1. chally

    Chally Erb flies free

    Chally’s spirit left his body as he slept in the early morning hours of Wednesday April 3rd. He continued to live his life to the fullest despite ALS wrecking his body bit by bit. This forum and all of you were so important to him. He talked about this community of friends every day. He was...
    • chally
    • Thread
    • als early free grace hours life
    • Replies: 37
    • Forum: In memory of
  2. V

    Husband is a possible carrier of c9 gene - anxiety over symptoms.

    Hi Everyone, My husband is 35 years old and has lost a cousin, an aunt, 2 uncles, (all to ALS) and currently watches his mom battle the final stages of ALS. His family carries the c9 gene. Upon visiting with his mom over Christmas (they live out of state) and spending a week surrounded by ALS...
    • Valerie064
    • Thread
    • ability als als? anxiety burning christmas early family genetic genetic testing hope husband muscle muscles research stages support symptoms testing thenar thumb treatment twitches twitching worried
    • Replies: 2
    • Forum: Could this be ALS?
  3. Clearwater AL

    The beach bar...

    Just something to read… in the “After 5 Forum Pub”. It took me a few days to put this together. My writing skills aren’t what they used to be. After Spring Break and for the rest of the year our beach bar often reminded me of a Chameleon. It was a side gig I got involved with. From opening...
  4. K

    Club membership at hand

    Well, damn. My local neurologist, after two months of elimination tests, has now indicated likely NMD, with ALS being the most likely candidate. He basically kicked the can down the road and referred me to Dr. Pulley at Jacksonville Shands. We see him in late April for a second EMG and opinion...
    • KevinM
    • Thread
    • als back ball candida clinical diagnosis early emg fasciculations life mri muscle neurologist onset planning progression spasms swallow symptom tests twitches weakness work
    • Replies: 41
    • Forum: Could this be ALS?
  5. KimT

    Dentist

    Today I had my remaining crown replaced with a temporary. In two weeks I'll go back for the permanent. The last thing I wanted to happen was for a cracked crown to break off when I'm not as mobile as now so I had it done. They had all the info in my chart and there was a new dentist only 28...
    • KimT
    • Thread
    • back dentist diagnosed early health info newly diagnosed pain physical therapy therapy vision wanted work
    • Replies: 1
    • Forum: General discussion about ALS/MND
  6. D

    My symptoms

    Hello I have read all the things I should before posting so please just hear me out as I have done a lot of research. First of all let me just say I am proud of everyone in here who has dealt with this horrible disease, now I know twitching isn’t a sign of als but can come along with it. My main...
    • Damion99
    • Thread
    • #symptoms als arm back early family family history fingers info onset pain problem research shoulder symptom symptoms thumb twitching weakness
    • Replies: 0
    • Forum: Could this be ALS?
  7. L

    Your avarage DIHALS?

    Dear forum users, I've read over several threads and you are so patient and kind to everyone that visits, I take my hat off to you. I tried my best not to post here, telling myself I am silly for thinking and regret the day I thought it would be a neat idea to Google my symptoms (this should be...
    • LaPizza
    • Thread
    • ache als als? back brain cured diet early family family history finger fingers heart hip hours mistake muscle pain stages symptoms twitch twitches twitching weakness work
    • Replies: 3
    • Forum: Could this be ALS?
  8. T

    How to best help my pALS in early stages?

    Good evening -- I'm asking all of you to share with me some ideas, tools, methods, anything that I can do to help my pALS with regular living tasks. He works just so hard to so such simple things -- getting dressed, undressed, etc - I know you guys know. He is in the early stages -- leg...
  9. W

    @Nikki J

    Sorry to ask but im a worried mother trying to understand this. ive been researching emg studies and if you look on the emg my sons recruitment patterns are all normal and to my understanding in MND or ALS even in early stages they would be abnormal recruitment patterns? Also same with Duration...
  10. P

    My Experience with Twitching

    Mid 30's male, grandmother diagnosed at 73. Began twitching in arm in early December, went away for a few weeks, came back in late December in left calf and r. arm, and felt like it was spreading each week: right calf, thighs, neck etc.. I twitch somewhere in my body every few seconds, for...
    • probablycrazy
    • Thread
    • als anxiety arm back clean emg diagnosed early emg immediately meds mri power stiffness symptoms tests twitching weakness worried wrong
    • Replies: 4
    • Forum: Could this be ALS?
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