1. jillinak

    Gallbladder issues/Removal?

    A few years back I had a gall bladder attack. I haven't had any since until 1 month ago. I was in the ER because the pain was so bad. An ultrasound showed that I had an inflamed gallbladder and gallstones. It was recommended I have the gallbladder removed in the morning. I have a DPS and Peg...
  2. Graybeard

    DPS, Diaphragm Pacing System, Feedback

    I tagged this onto my original thread, but seems to have gone unnoticed. ----------- This was forwarded to me by a third person as part of a clinic visit last week: "Cedars-Sinai is in the process of signing up qualified ALS patients for a clinical trial of a device called a "Pulmonary...
  3. N

    Falling apart in front of PALS

    I've tried so hard to keep it together these past 8 months or so ... but yesterday I started to cry in front of him and he held me quietly and said, "It's ok - it's normal ... there would be something wrong if you didn't cry. You've been doing such a good job..." OMG - him comforting me. I'm...
  4. starente15

    Diaphragm Pacing System (DPS)

    Hi all. I'm trying to found out when/if DPS is a viable option and if it's available to anyone. Is it still in clinical trial? TIA!
  5. S

    Good article - man uses DPS for more than 6 years

    NeuRx Diaphragm Pacing System Approved for ALS | MDA/ALS Newsmagazine
  6. N

    Prognosis: One Year

    Hello to all who happen to read this. We went to our second ALS Clinic in Pittsburgh PA today. Once again there was no respiratory therapist present. argh. I had called several times to ensure that one would be present to check T's breathing levels since we are going to Cleveland a week from...
  7. Graybeard

    On My Way to DPS, Diaphragm Pacing System

    My initial visit to Beverly Hills Cedar-Sinai hospital to be screened for the DPS clinical trial was today. Wifey had already left for her new ceramics class at zero dark thirty, so I was on my own. Greybeard the Pirate Parrot picked this morning to take vengeance on me. He's bonded to...
  8. S

    Dps/peg soon

    Finished all the prelim tests and will know soon when surgery will be. I'm never short of breath but I seem to qualify for the DPS. They do PEG at the same time although I can still eat almost everything. For the future & 1 less surgery.
  9. AzBabs

    DPS problem

    Hi, I received my DPS in April. All was fine , had an adjustment in May. Settings on low, just felt slight tingle. In June I reached with my left arm, across my body to close the sliding Van door that was to my right and slightly behind me. I felt a horrible pulling sharp pain in the area...
  10. P


    Got eye gaze dynavox a month ago. It takes a lot of practice but I am getting better. It just take time. I name everything my feeding tubes name is Peggy Sue, my DPS is Sparky and my dynavox is May West. The she bats her eyes for those of you who may not know who May West is .