1. T

    My story of the Diaphragm Pacing System Implant

    I had the Diaphragm Pacing System (DPS) implanted on Wednesday April 11 and I thought I would share my experiences here for those who are interested. While researching for my own decision I soaked up everything I could find here and elsewhere on Al Gore's invention but I still wished there was...
  2. M

    Diaphragm Pacing System

    Hello all, I am new to this forum. My mother was diagnosed with ALS in February 2012 (but has had symptoms since July 2010). She is 72. She cannot breathe on her back at all, uses BiPAP at night, walks with a walker, uses a chairlift for the stairs (PWC on order), and her speech is becoming...
  3. SixthKid

    NeuRx DPS

    My Dad is going to Brigham & Womens today to be tested for the NeuRx Diaphragm Pacing System. I read the previous thread regarding this (it's now locked) and although I am thankful for all the research that is out there being done, whether it is for ALS or cancer, etc. I just have my doubts if...
  4. M

    FES story . . . a technique similar to DPS

    Watch This Robot Control a Person's Arm Using Electrodes - IEEE Spectrum
  5. M

    These DPS notices say news is good for over 50% of the newly diagnosed ALS patients

    The language of this new and latest notice, you may need to 'login' to their web site to read it, suggests that more than fifty percent of newly diagnosed ALS patients are likely eligible for DPS, whereas other notices have either not articulated an estimate or offered an estimate that implied...
  6. M

    Diaphragm pacing system receives FDA approval for use with ALS patients

    Diaphragm pacing system receives FDA approval for use with ALS patients
  7. J

    New and have some questions about drug therapies

    Hello all! I'm new here and I'm in the process of being DXed. I want to thank you all for sharing so freely on here..for people new to the process, it brings great comfort as well as a wealth of knowledge. My appointment with the MND/ALS Center at the U of U is over a month away. I can't...
  8. MtPockets

    Stimulation of Diaphragm Muscle in ALS

    This is information about a trial program to insert electrodes into the diaphragm to help with breathing. You can read the details at: http://mda.org/research/view_ctrial.aspx?id=182 Synapse Biomedical, in conjunction with Case Western Reserve University and University Hospitals of Cleveland...
  9. C

    Diaphragm Pacing Stimulation

    Anyone heard of DPS - Diaphragm Pacing Stimulation device? Seems like a simple idea. Excerpt from the link below: The goal is to free a person’s dependence on a ventilator over time by stimulating the diaphragm with intermittent electric impulses. They cause the diaphragm, the primary muscle...