denial

I have been taking nuedexta for the last month (samples from my doctor) while we tried to get the prescription filled. Medicare has denied and says we can appeal. Walgreens says our cost would be $1200 a month ! I think it has really helped with swallowing since I’ve gone from 3 nighttime...

My husband gets seen by the VA but they sent us to UT Southwestern to the pulmonologist to get a sleep study and orders for a cough assist and Trilogy. They are also the ones who are going to do the PEG tube. We had our first appointment there a couple of days ago. Towards the end of our...

This is the last time that I will post to this site. I was a care giver for my wife for 2 years....I was in denial about her ALS and never believed it. She had horrible pain before she passed...so anyone who thinks that ALS isn't painful is wrong. Some people with this horrible disease do have...

Hi and thanks for letting me join this forum. Let me start off by saying that I am not in denial, I am just following a gut feeling and want to see if anyone would do the same thing. My dad (67) was diagnosed with ALS recently. It started with him having trouble to button up a shirt and sign...

I'm still not sure if I want to be a member of this club...I've been hanging around this site reading the threads and trying to find a reason I shouldn't be here. I'm for sure in denial but I may need advice, friendship so ... just in case I wake up from denial, I thought I'd join. :shock: I am...

Hi, I've had lots of neuro symptoms for years now, but the past year have been the first time I've actually had a neurologist that has seen some UMN and LMN signs. I've had fasiculations in my lower legs, I get parasthesias, I've had some trippings at times, I get tiredness in my legs at...

Hope I'm posting in appropriate forum. As previously posted, my twin brother was diagnosed w/ >90% certainty at Duke w/ ALS. He's had drop foot, weakness, leg, abdominal, throat, neck cramps and significant atrophy. He had a full MRI ordered by another specialist on the 9/18. Follow up on 10/3...

hi everyone. i'm writing this with tears in my eyes and i'm reaching out for support. a family member was just diagnosed. i'm terrified, scared, in denial. i don't understand what is going on and i keep breaking out into sobs as i walk down the street. do you recommend a second opinion? what...

We got a call around 5 tonight and with sirens in the background heard that mom stopped breathing. We prayed for no trache, she had been firm on this point, and a few minutes later got the second call to say they were unable to resuscitate her and she had passed. There are too many feelings...

Hello everyone, I haven't posted very much, but I need to vent a little today. My BF was officially diagnosed with ALS Dec 2016, but had symptoms for at least a year prior to that. Now that he is becoming less mobile, I find it very frustrating that he is not taking steps to make...