cpap

  1. trying to stay positive

    Update on my husband

    Hi everyone. We went to clinic yesterday for the quarterly visit. The doc still says he seems to be progressing fairly slowly. He got some pain meds and has been going to PT twice a week for the past 3 weeks or so and says it helps with his shoulder pain. He also started on Prozac a week ago...
  2. trying to stay positive

    Shortness of breath that comes and goes

    Hi all, As many of you know, my husband was DX with limb onset ALS in 8/07, first symptoms appearing in spring of 05. For the last few days he has had some shortness of breath. I noticed it today when he walked upstairs, and my daughter says he had it yesterday just sitting at the computer...
  3. Lorie

    My Heart is Sick

    Today I went to help with Tim. He was having problems breathing and I found the CPAP Co. didn't come to fix his machine three weeks ago when I called them. My Family didn't tell me. (he may have to go to the hospital). The phone # is on the machine. I called while I was there and they got it...
    • Lorie
    • Thread
    • breathing brother cpap divorce family heart hope problems progression slow progression
    • Replies: 20
    • Forum: Current caregivers
  4. trying to stay positive

    Difference between a Cpap and Bipap?

    Hi. I hope everyone had a good holiday. I had a question about the Cpap and Bipap machines. My DH (DX 8/07) went for a sleep study (they are aware of his DX) and they told him he has sleep apnea & needs a Cpap. It seems to me from reading posts here that Pals are generally on Bipaps. Can...
  5. B

    question on bipap/cpap

    Decided to post in quest of info. Result of my sleep study was some obstructive sleep apnea that neuro said was not from diaphragm weakness. I go for swallow study Wednesday due to that issue. I do not snore and am not overweight so am curious about causes of obsa and if anyone has knowledge...
  6. NvrGiveUp

    A little worried about a long plane trip...

    Hey everyone. Sorry to have been absent for a while... was busy graduating and starting grad school and visiting lots of doctors with T. It has been crazy. The time in a day keeps getting shorter and shorter. :) Well... my question is has anyone taken a LONG plane trip before while having...
    • NvrGiveUp
    • Thread
    • advice back battery bipap breathing christmas confusing cpap diagnosed diaphram eating equipment family feeding feeding tube hope hours life neurologist night power problem questions sleep trip walker wanted wheelchair work worried worry
    • Replies: 19
    • Forum: Current caregivers
  7. C

    Exaustion

    I don't know if there is help for what is going on with me lately. I cannot seem to get enough sleep. I am just too tired to move most of the time. I stay in bed all weekend and sleep during my lunch breaks and go to bed the minute I get home. I expect to lose weight soon because, given a...
  8. M

    Cpap vs BiPap

    Hi, I have several questions but I'll send then in different emails. Is there anywhere I can find a very clear, well documented, side by side review of Cpap vs BiPAP use with ALS? Today the pulmonary dr. mentioned we could use either cPap or BiPAP and my understanding has been that only BiPAP...
  9. sara06

    I love you Momma! 6-14-58 ~ 10-28-06

    Well, I know that GOD will never give us more than we can handle...but I do believe he has been testing my limits and loyalty lately. My brother was married on the 20th of Oct.. Which I did a lot to prepare for. My mother was not going to miss it for the world. Something very ironic... my...
    • sara06
    • Thread
    • als back bed bipap breathing brother cold cpap dad death diagnosed driving eyes family feeding hospice hours life lift love night nurses oxygen pressure shaking sleep story support testing wanted wheelchair
    • Replies: 18
    • Forum: General discussion about ALS/MND
  10. O

    Question CIDP or MND

    Hi ... I am new at the site ... I was diagnosed with Multifocal CIDP w/ Neuromytonia overlap (I am in my 4th year) - which both are supposed to be autoimmune. Over the last year I have gone to two canes and severe breathing overnight problems and dysphagia progression. The breathing is...
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