clinical

  1. JohnnyMags

    Clinical Trials

    People have told me to look into Clinical Trials. I'm totally lost in that department. I asked my wife's ALS doctor via text about CT's but he just ghosts me on that one. I went to Clinicaltrials.gov but I don't understand what they are showing me. Nor do I know how to apply if there was...
  2. lgelb

    If you value clinical research, disease control, and/or patient care...

    You might want to dial up the US Capitol switchboard: 202 224 3121, ask for the office of your Senator or Congressional representative, and give whoever answers the phone a little ALS context for the forthcoming confirmation votes and other measures to come. Already, thousands of scientists in...
  3. Nikki J

    Webinar on clinical trial focus in Canada

    They did say they would discuss worldwide trials too but will be mostly Canadian https://research.als.ca/page/144453/subscribe/1?fbclid=IwY2xjawGHjB9leHRuA2FlbQIxMAABHcQ77KuAGcfddOACNcfxu0MPlUTwtZvtJldUHUZiZR4vMZY0wFzUaTaL4g_aem_2adHnhy6VrRdvMnPhDl98g
  4. P

    Thoughts on ILB, which may slow ALS progression, per data from small clinical trial

    Treatment with a high dose of ILB, an experimental injection therapy being developed by Tikomed, was well tolerated and appeared to slow the progression of amyotrophic lateral sclerosis (ALS) in a small clinical trial in the U.K. That’s according to data from the exploratory Phase 2 study...
  5. G

    Help with Clinical Trials

    Hi, I have a question about clinical trials . My husband has ALS and has been taking Riluzole 50 mg and Relyvrio 3-1 g pack . He would like to go in to a clinical trial but not sure where or how to begin it. I see there are some new drugs that seem hopeful but how do you get into them? I talked...
  6. L

    On the verge of a breakdown ..all symptoms of Als

    A year ago I started feeling numbness and tingling in my leg and burning sensation in my head I did a brain MRI which showed corticospinal tract hyperintensities which are biomarkers of Als. Neurologists said no Als and related my symptoms to anxiety but symptoms exacerbated a lot.later I began...
    • Lavender
    • Thread
    • als anxiety arm brain breakdown breathing burning clinical crying diagnosis emg fear mri muscles slurred speech speech swallowing symptoms symptoms of als tongue weakness
    • Replies: 10
    • Forum: Could this be ALS?
  7. J

    Multiple symptoms for months

    Well for starters I found this website in a state of my panic and have read others threads about similar symptoms in a search for reassurance. I have been very apprehensive about posting here because I know a lot of people are probably just overexcited or scared and have convinced themselves...
    • jm5834
    • Thread
    • cals clinical cramping cure emg family family history fatigue fingers heart hope insurance neurologist pain scared second opinion sleep speech symptoms treatments twitches twitching weakness website worried
    • Replies: 10
    • Forum: Could this be ALS?
  8. A

    Hoping for a little reassurance

    Good evening, everyone, First off, I have been constantly amazed at the grace and promptness with which questions from anxious people here are answered, and in my time lurking over the last couple months these replies and stickied threads have been a huge resource. So thank you! I'm just...
    • AnxiousinVA
    • Thread
    • als atrophy back bed clinical cramping emg family family history grace holiday hope hyperreflexia leg pain neurologist questions running shoulder symptom symptoms twitch twitches twitching weakness worried
    • Replies: 3
    • Forum: Could this be ALS?
  9. Nikki J

    PALS chat thread ( PALS only please)

    Hi everyone I am starting this thread again. We PALS have been too quiet! Please continue to start threads when you have a specific issue or if you have something to contribute or discuss that you would have put in the non clinical area still do so. This is more just to chat among friends-...
  10. C

    Tongue fasciculations that I can see but can’t feel.

    Hello everyone, and thank you for your time to read this and respond. I will be making a donation when I get paid. I’m 28 years old and have had twitches for 3 months. And yes I read the thread that if I have twitches read this first. The problem is that I have terrible health insurance and...
    • Cynthiag887
    • Thread
    • back bfs clinical coughing fasciculations health insurance neurologist problem tongue tongue fasciculations twitches weakness work worried worries
    • Replies: 13
    • Forum: Could this be ALS?
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