clinical

  1. M

    Is this Bulbar PLS/ALS?

    Hi so to start with I’m male age 26 So a few months ago I got rapid heartbeat tachycardia (I know not often a symptom of MND), They found no cardiac explanation, then started getting muscle twitches which I still get sometimes, again no obvious explanation. I noticed a panting in my throat...
  2. S

    Very Concerned about Bulbar

    Thank you to anyone taking the time to read this and giving me your thoughts and insight. Please know that it is truly appreciated. I have read the stickies, but still have some questions. I am a 40 year old male. I began with a twitch in my left bicep in early December 2018, but the...
  3. J

    Fasciculations ans hyperreflexia.

    Hello everyone. First if aller sorry for my english, it's not my first langage... I'm a 37 y.o. girl. I have a MS suspicion because i have hearing loss at one frequency in my right ear (-50db in high frequency). My mother, brother ans uncle have MS. But i have a LOT of fasciculations...
  4. A

    Worried about these symptoms

    Hi! Male 44 years old here. ’m sorry to be posting but I finally decided to seek your advice. My wife and I are nervous and some of your thoughts might really help us. I’m having some symptoms that are worrying me. Here they are in brief: Dec 22: Odd headache in left temple— three pulses, long...
  5. J

    Frightened

    Symptoms started nine months ago with tingling and numbness in right leg and muscle cramps .I had gradual rt leg weakness wide spread fasiculations and jerky movements five months later I got severe reflux frequent burps and gags ,perceived weakness in my rt hand and what really frightens me...
  6. C

    Is this ALS?

    Hello everyone, in a 38 year old male. I worked out 3 - 4 times a week until the onset of fasiculations, which started 2 1/2 months ago. Since then, my time has been spent between doctor visits and a constant anxiety and worry. I try to workout, but it's down to maybe once a week because of the...
  7. N

    Haven't been here since 2011 and now I am scared. Triggered again.

    So I am back after a brief hospital stay which caused whatever I have to flair up again. It all began in 2011 *******-------Feb 4-5th 2019-----------********* So went back to same neuro with exasperated symptoms after a brief stay in the hospital for severe constipation. After the hospital...
  8. J

    Brainstorm Nurown 'Right to Try' participant shares progress

    As some of you may know, Brainstorm granted one PALS free access to NurOwn as a 'thank you' for the work he did on Right to Try. He is not in a trial but is being given the course separately. His update is on Facebook -- matt.bellinski.7 Mod note -- not linking directly due to fundraising...
  9. C

    A Complicated Case

    Good afternoon. My name is John Marburger. I am 42, a retired Naval Officer and cancer survivor with some oddities at that go along with it. Apologies in advance for the length of this post and MANY thanks in advance for those of you reading or responding to it, especially those fighting this...
  10. E

    Balance issues

    Hello everybody, I have a question that I felt like couldn't be answered in the Stickies. For about 3 weeks I have had issues where I am walking, and if I do a quick turn on one leg, I stumble a bit. I have gotten out of bed at night to have my legs shake uncontrollably, or I stumble around the...
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