bulbar

  1. B

    C9 carrier with possible symptoms

    Hello everyone! This ended up being a very long post so I I'm going to put a tldr at the end for those of you with limited energy. This is my first post here and as a c9 carrier I will likely be lurking around for a while as it is the most comfort I have found so far. I want to say thank you...
    • Boumike
    • Thread
    • arm atrophy bulbar bulbar onset cramping cramps dad emg ftd money muscle twitching neurologist onset pain research sleep slurred speech speech stiffness story symptom symptoms twitches twitching weakness
    • Replies: 7
    • Forum: Could this be ALS?
  2. M

    Is this Bulbar PLS/ALS?

    Hi so to start with I’m male age 26 So a few months ago I got rapid heartbeat tachycardia (I know not often a symptom of MND), They found no cardiac explanation, then started getting muscle twitches which I still get sometimes, again no obvious explanation. I noticed a panting in my throat...
    • Mrman
    • Thread
    • age als als? anxiety bulbar bulbar als choke clinical diagnosed eating emg mnd muscle muscle twitches neurologist pls problem swallow symptom tests tongue twitches twitching umn voice
    • Replies: 9
    • Forum: Could this be ALS?
  3. D

    Worried

    Hey everyone, thanks for reading. I am a 24 year old girl, no family history of ALS. I KNOW that I have health anxiety but I can’t seem to shake the idea that what I’m experiencing might be ALS. So two weeks ago I was home and my finger was twitching. Naturally I panicked and googled and ALS...
    • Drd94
    • Thread
    • als anxiety bulbar bulbar onset eating family family history finger health onset reading sleep swallow symptoms tongue twitching wanted worried
    • Replies: 5
    • Forum: Could this be ALS?
  4. S

    Very Concerned about Bulbar

    Thank you to anyone taking the time to read this and giving me your thoughts and insight. Please know that it is truly appreciated. I have read the stickies, but still have some questions. I am a 40 year old male. I began with a twitch in my left bicep in early December 2018, but the...
    • SLU27
    • Thread
    • allergies back bed bulbar bulbar onset clinical concerned early emg family family member friend muscle neurologist onset problems questions reading swallowing symptoms tremor twitch twitches twitching voice weakness
    • Replies: 4
    • Forum: Could this be ALS?
  5. M

    Young male bulbar symptoms

    I posted two years ago but was unable to post on that thread but it had been closed. During the time between then and now for the most part I was able to move on from my fears of ALS. However that has changed recently as I have developed a mild slur, not noticed by normal folks but was...
    • mddarr
    • Thread
    • als back breathing bulbar bulbar symptoms clean emg clothes diagnosed finger mnd mri muscle neurologist night normal emg scared sleep spasms speech symptom symptoms tongue twitching work young
    • Replies: 2
    • Forum: Could this be ALS?
  6. I

    Weakness

    My husband has bulbar ALS .The DR has upped his dosage of Baclofen to 5 times a day.He is considerably weaker taking after taking them.Anyone else .Thank you .
  7. R

    Worried I may have ALS , scared beyond belief , no one to talk to

    Hello everyone , thank u for taking time to read my post , any and all feed back is greatly appreciated , and for all of u suffering with ALS I pray for u all and am starting a campaign to raise and donate money for ALS ! Ok so here is my story , for the past 2-3 years I have suffered with what...
    • Reneeb
    • Thread
    • als anxiety back bulbar bulbar onset burning emg heart iron medicine mnd money neurologist night onset scared shortness of breath story swallowing symptoms taste test twitching work worried
    • Replies: 0
    • Forum: Could this be ALS?
  8. A

    I have to rule out ALS

    My story starts in Feb 2018. During an xray for shoulder pain they discovered my left diaphragm was elevated, but they didn't bother to tell me. They gave me painkillers for shoulder bursitis. I complained to my PCP in Sep 20108 of constipation. She ordered an abdominal CT scan that showed...
    • anthem
    • Thread
    • abdominal age als back bulbar constipation diagnosis diaphragm fear fvc insurance life mucus neurologist pain paralyzed saliva shoulder story swallow swallowing symptoms test tests wanted
    • Replies: 2
    • Forum: Could this be ALS?
  9. K

    Optimal living situation- financially, emotionally, spiritually etc

    My pALS is my mom. She is newly diagnosed with bulbar onset ALS. As of now her mobility is not impacted too much, just her speech, swallowing and breathing. We have been discussing living arrangements as her mobility and breathing decline. Other pALS out there, what did you decide? Did you...
    • Kellbellab
    • Thread
    • artist breathing bulbar bulbar onset decline diagnosed disability family hospice insurance medicare mobility newly diagnosed onset social security speech swallowing va benefits work
    • Replies: 4
    • Forum: General discussion about ALS/MND
  10. N

    Haven't been here since 2011 and now I am scared. Triggered again.

    So I am back after a brief hospital stay which caused whatever I have to flair up again. It all began in 2011 *******-------Feb 4-5th 2019-----------********* So went back to same neuro with exasperated symptoms after a brief stay in the hospital for severe constipation. After the hospital...
    • NotKnowingSucks
    • Thread
    • als arm autoimmune back bulbar clinical constipation cramping denervation emg exercise fasciculations immediately media mri neurologist scared shoulder support symptoms tests tongue weakness worried wrist
    • Replies: 11
    • Forum: Could this be ALS?
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