bulbar

  1. R

    Worried I may have ALS , scared beyond belief , no one to talk to

    Hello everyone , thank u for taking time to read my post , any and all feed back is greatly appreciated , and for all of u suffering with ALS I pray for u all and am starting a campaign to raise and donate money for ALS ! Ok so here is my story , for the past 2-3 years I have suffered with what...
  2. A

    I have to rule out ALS

    My story starts in Feb 2018. During an xray for shoulder pain they discovered my left diaphragm was elevated, but they didn't bother to tell me. They gave me painkillers for shoulder bursitis. I complained to my PCP in Sep 20108 of constipation. She ordered an abdominal CT scan that showed...
  3. K

    Optimal living situation- financially, emotionally, spiritually etc

    My pALS is my mom. She is newly diagnosed with bulbar onset ALS. As of now her mobility is not impacted too much, just her speech, swallowing and breathing. We have been discussing living arrangements as her mobility and breathing decline. Other pALS out there, what did you decide? Did you...
  4. N

    Haven't been here since 2011 and now I am scared. Triggered again.

    So I am back after a brief hospital stay which caused whatever I have to flair up again. It all began in 2011 *******-------Feb 4-5th 2019-----------********* So went back to same neuro with exasperated symptoms after a brief stay in the hospital for severe constipation. After the hospital...
  5. L

    Question about Bulbar

    I really didn't want to post on here because I know those confirmed with this horrific disease have alot more on their plate. But I also recognize it is a great resource with alot of Knowledgeable people. A little about me, 42/m very active and big into fitness and bodybuilding most my life...
  6. K

    FVC at diagnosis and progression rate

    My mom’s FVC was 50% during her initial respiratory evaluation at the ALS Clinic at Mayo. Because of this, she is not a candidate for any clinical trials. She will be receiving a cough assist and trilogy. Does her diminished pulmonary function indicate ALS progression is aggressive? She is...
  7. R

    Terrified Bulbar or Limb Onset? Varying Symptoms

    Hello, I've been reading this forum for a few weeks now and I've held back from posting my symptoms but it seems to be progressing so I'm more anxious. I'm 28 year old male and I'm extremely worried that I might have early symptoms of Bulbar or Limb onset ALS. It all started about 7 months ago...
  8. A

    Please help.I need a opion at least!!

    Hello everyone, and sorry for my thread.It took me while to get the nerve to post here because i really think the best of you wonderfull people, but i am very freaked out. It all started 2 months ago when i got some fasciculation on my right upper leg.Since than, i started to have widebody...
  9. K

    Slow or fast progression?

    Hi All, My dad was officially diagnosed with als in March 2018 although he was exhibiting signs as early as May 2017. I remember going to the neurologist for the diagnosis and my dad walked there. Slowly but he walked. Now he can barely walk in a walker. His left side is much stronger than his...
  10. M

    25 years old - BFS has become something more - please help

    Hello all and thank you in advance. My name is Mike. I'm 25 years old, turning 26 next month. Surprisingly, in the face of what I wholeheartedly believe is an onset of ALS, I'm doing an okay job of trying to stay calm, but still very worried. I've always had an odd anatomy. God gave me a bit...
Top