bulbar

  1. I

    Minor bleeding at tube site. Normal?

    I had my feeding tube put in in April of last year. My ALS is bulbar and I no longer can take anything by mouth. Several weeks ago I noticed that there was blood at the opening. It is not a lot, but there appears to be a little blister or skin tab protruding from the opening. I am now...
  2. K

    Sorry to find myself here but glad I found you

    Finally, here. I have been a longtime lurker. I have been tempted to ask questions, but ultimately I decided to wait. And I waited for a long time. Having been finally diagnosed, I will let you know how everything began. In the spring of 2016, I started noticing some problems with my left...
  3. W

    Symptoms bulbar and left arm

    Hello! My heart goes out to anyone with this horrifying disease. Nobody deserves it. I have read the sticky in this forum and have been unsure wether I should post, but my anxiety about this disease is severe. I figure I should seek the advice of people who actually have this disease and...
  4. S

    Progression in symptoms - need of advice please

    Hello, and first of all, I wish you all the best you can all get for 2019 including love and peace in your souls. I posted here a few weeks ago, as I was concerned with a myriad of Symptomes including feeling of weakness in arm and one leg, beginning of fasciculations, a number of sensory...
  5. R

    need opinions and guidance

    Hello to all, I am new to this group and would love some information and perspective on people who have seen this terrible disease first hand. I am posting for my mother who is 58 years old and experiencing an array of symptoms and problems for about 5+ months now. This all started back in...
  6. F

    Thick phlegm

    Hi Can anyone help ? My husband 65 years young, (ex Indian Navy), physically very active till diagnosed and even after, has pseudo bulbar palsy. Diagnosed May 2017. The last couple of months he has lower limb weakness- uses a walker. Is on Edaravone and Rilutor. Of late he has thick phlegm...
  7. C

    Tongue Quiver

    Good afternoon, My name is Chris and I am a 29 year old male. For the last 4 months the sides of my tongue have quivered non-stop. The best way to describe it is as if the sides of my tongue move left and right at an incredibly rapid pace while the middle maintains it's placement. I can not...
  8. K

    Swallowing Air, but Can't Burp

    Hello, all, hope you can help with yet another issue: combed the threads, and don't see anything on this. My 87-year old mother, limb onset, is having a lot of bulbar symptoms now. They've really worsened over the last few weeks. She makes these tiny "mphhh, mphh, mphhh" noises after she...
  9. S

    Update - 12/24/18 - Extreme bulbar worries

    Hello everyone...I hope everyone is having a good Christmas season. I wish I could say the same. It's been almost 6 months since I have been here. Some things have gotten better and some a lot worse/terrifying. I was hoping to never have to come back here but my situation has dictated I do...
  10. G

    Bulbar issues, fatigue

    Hello! First of all, I am really grateful for all the help of you, PALS and CALS, provide to us that are still lost in our medical conditions, and I respect you immensely for that. In August, my first symptomes occured. After a spasm that woke me up, my middle finger on my right foot started...
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