awareness

  1. C

    If you have ALS - please read.

    Hello All, I am new to the community and I do not have ALS. I do however have extreme panic and anxiety disorder and hypochondria. On my relentless search for answers I have read countless articles and stories of PALS. I just want to take a second and thank you for all of the time and effort...
  2. KimT

    Things I learned from this disease

    1. Don't fall and don't take risks that might lead to a fall. 2. Get other conditions treated early. I have hemorrhoids and should have had them taken care of last Spring. Now I'm in so much pain and still have them. 3. Understand progression rates can and do change 4. Get a local...
  3. H

    Repeated falls

    My sister just had her 14th severe fall this weekend, and each time she falls with no warning and lands flat on her face. She has sustained bruises and lacerations previously, but this time she fell hard enough on her temple to make her woozy and disoriented (but not unconscious), so they took...
  4. scaredwifetx

    The Gleeson story

    I went by myself today to see the Gleeson movie. I must say, it was the most heart warming movie I have ever seen. it is mixed with humor and sadness. I think I cried the majority of the movie but it did not matter since I was the only one watching it. It was an early movie. Steve's attitude...
  5. S

    ALS Awareness

    My PALS has a friend that wrote about him on Chronically You... He added some things that he wanted people to know about how ALS is affecting him. I am attaching the link if anyone wants to take a look. https://chronicallyyou.wordpress.com/2016/08/03/als-august-and-the-ice-bucket-challenge/
  6. W

    This is for anyone who is currently scared out of their shorts

    I'd like to preface this by saying I am a self-proclaimed lurker on this site who also just endured what to me, in my limited little world, would consider to be the worst three weeks of my life. Out of respect for those who have a confirmed dx of this terrible disease, I never did dare to start...
  7. KimT

    The ALS Awareness Project

    Special thanks to Tillie for all her knowledge and formatting skills. I've already had interest from doctors, clinics, and other health care providers. They want copies. Here's the latest. Thank you to all on the forum who contributed. The hardest part was the personal interviews. I'm...
  8. I

    My Life With MND - Short Documentary

    Hey I would like to introduce myself to this forum. My name is Shaun Kirman and i am 22 year old. I have just obtained my TV and Film degree in Grimsby, United Kingdom. For my final project i created an awareness short documentary based on MND, The reason for this is that my father has been...
  9. S

    From a teenage daughter author's point of view

    Hi everyone. My name is Sarah, and I am nineteen years old. The last time I posted on here was about three years ago. My dad was diagnosed with ALS in June 2012, now three years ago. I found out on July 15th, 2012. I found out because I accidentally found a bottle of Rilutek, and I googled what...
  10. Nuts

    ALSA Taking Input from PALS and CALS Tuesday

    There is no link in this post, which I copied from the ALSA Facebook Page. You can go there to find the link to register The ALS Association June 14 at 11:09am · Global ALS Awareness Day is Tuesday, June 21, and we’re commemorating the special day with a virtual listening tour event! People...
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