awareness

We are new to this world, as you all were at one point. I am embarrassed to say, but before the letters ALS were mentioned to us by a neurosurgeon, and I began researching, I had never really even heard of it other than the ice bucket challenge. Now, I see articles all the time, hear news...

Haven't been on here in a while since I was diagnosed with Myasthenia Gravis a year ago. Oddly enough, I am seronegative to all of the MG antibodies, I have tested negative to ACH, receptor, binding, blocking, musk and Lamont eaton antibodies. Their is a new antibody on the block though, LRP4...

The MDA and ALS association should be ashamed of themselves along with MLB for not partnering up to advocate for this disease this disease is more known as Lou Gehrig disease, one of the greatest players in baseball. So MLB on mother's day can make this grandiose statement for breast cancer...

Today was our local walk. Last year I worked so hard to organise the whole thing, only to have it rain all week, causing local road flooding and we had to call it off. We still raised, if I remember right around $14000 even without walking. Here's a funny story though. A bunch of us that live...

My nephew wrote this for May ALS awareñess. A tribute to all of us ALS fighters... already it's may. baseball has been back for a month. the days are growing longer. sometimes, they start to blur together. it all becomes routine. I wake up in the morning and drive into work. I go to the...

Good afternoon. I have an upcoming appointment for a referral to an neurologist but I am consumed with nerves and worry. I felt I need to write this out I noticed some clumsiness in my pinky and ring finger on my dominant hand. There's some perceived weakness, namely it "feels" weak and my...

Greetings All, I am a 46 year old Black woman who was diagnosed with Progressive Bulbar Palsy in August 2015. (stressed my race because I haven't ran across many African Americans with this disease and I hope to raise awareness among my race) My symptoms started slowly I noticed a slurr in...

Hi, Today I have started to believe that my mother might have ALS (still in a bit of denial). She has lost the ability to walk as he other leg is also affected now including the ability to easily turn sides. So far, she has problems in lower limbs only (somehow I am just hoping it will stay...

Hi all. Up front thank you to everyone who may read this and reply - I do so appreciate your feedback. I am historically a very active 37 year old female. - walk everyday, long hikes on weekends (18 plus miles with camping gear), snowshoeing, biking, horseback riding, even for career I am in...

Hello. Please, If I am out of line, I apologize. I truly want to help. From what I can see, and hear from the experts, a large majority of people who come into the DIHALS, including myself, suffers from anxiety. I thought it might be helpful to add a few symptoms of Anxiety, that can mimic...