trfogey

Hi Tr, just wanted to stop by and thank you for all of your incredible help to me and everyone on this site. How are you doing?
Kathy

Like I said before I may not know personally what one with ALS goes thru. However I have treated those with life threatening diseases and it breaks my heart. I am very scared for my BF and am very realistic as to what lies ahead. Thats why I'm on this site for support from others, it makes me deal with his disease better. I just wanted to let you know that sometimes what you say can be hurtful even if unintentional. Everyone on this sight is here for support and comfort. I do appreciate the advice you haven given. I wish you the best too.

Look I didn't mean to be hurtful in what I said. Actually I did pre med and my dad is an MD. However I am not saying I know much about neurology. That is why I'm on this site. Yes as a PT I do need to know about motor neuron diseases cuz I treat pt.'s with neuro dx. I am not at all in denial about my BF (he is in denial and thats what makes it hard for me however I would rather him enjoy his life) My concern is for his 8yr. old son. his dad is his life and my BF never got life insurance(crazy I know everyone should have it, I do) I want his son to be taken care of but now its too late with PBP dx.

Hi Allen. Just stopping by to say hello. Hope you are well.

I just read your response to Kathy. My BF has speech articulation problems due to spasticity and decreased tongue mobillity. Not due to muscle weakness. Has UMD don't know what yet. So not all prob. due to weakness!!! She has a right to be scared when she experiences changes in voice or sensations in tongue. You would be too. What education do you have besides being dx with ALS? Be alittle kinder. You wouldn't want to be treated the way you are treating others!!!!

you really need to be more sympathetic!!!!!

. I can tell you I am more stressed about this then my BF he is kinda in a stage of denial. I may not have the disease but it tears me up inside to know what may lie ahead . His neuro has said to me ALS is high on the list for him. Talking to those on this site is comforting to me. I am staying positive but also realistic. I appreciate your info as well as everyone elses.

I read your reply no need to be rude. You don't think I have done research. I am always looking online and in texts as well as clinical research studies. I can't sleep at night up reading all the time. I learned all bout neuro diseases in school. Had to take neuroscience. It would be easier if I didn't have the knowledge I have. (part of my field I treat lots of pts with neuro involvement mostly CVA.) That is why this is more confusing to me cuz I am continously trying to figure about my BF symptoms. I drive him crazy testing his relexes, tone ect. Not everyone is text book thats why I asked quest. on this site to see if anyone has similiar symptoms. And like I said first I heard of PLS was here. I may not be able to truly know what one with ALS is going thru. However I have treated Pts with Als in endstage and to see them suffer was emotionally draining for me broke my heart. Would never wish this on anyone

I can't believe you have made that many mistales in ur lifetime. Boy that just means I haven't done a very good job in the learninmg/mistake department!

And Y R U up at this time of the am. And B4 U ask me the same ?, I wanted to tell U that my daughter, Lindsay was kind enough to purchase me a smartphone so when I am released from the hospital {I tried to commit suicide about 2 months ago} I will be able to use it without my husbands knowledge.

Allen,

How did you get to be so smart? (I have been reading your last few posts)

Kimberly

Allen,

How did you get to be so smart? (I have been reading your last few posts)

Kimberly

Hello, trfogey how are you doing today.I wanted to pick your brain on a topic that i know little about,which is most things.Im looking around for long term care insurance just incase i might have als.Do you have any experience with ltc ins. any suggestions about what to purchase,carriers, etc..Im not that old and i want to be around long enough to see my daughter graduate and maybe have grandchildren but i dont want to be a burden either, particullarly financial.I know enough that if i get diagnosed i wont get any type of insurance.Anything you can share would be greatly appreciated.

Hi Allen,
I killed my NetBook this morning and I need to make a quick decision about a replacement. Knowing that you're well up on things I'm interested in any thoughts you might have about running Windows speech software on an Mac platform? I'm quite tempted to go that way, but is it a bad idea? Thanks for your thoughts.
Roderick.

hello! just stopped by to see if everything was ok after Irene? it was pretty bad here. im not fan of storms!
ami

Picked up a black and decker electromate 400 over the weekend before Irene came through. We never lost power, but I was glad we had it. Thanks again for the tip.