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  • I added Painful legs moving toes to the list of diagnoses in the sticky. Thanks for suggesting it.
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    Scrdtodth
    No problem; the way it presents itself can be scary (for instance, I have hyperreflexia, etc...) and you have to have things ruled out. If anyone ever has these sorts of movement disorder type symptoms, it is worth pointing to...
    After all my tests came back normal (blood, MRI's, EMG, and neuro exam in office), the neurologist basically said there's nothing she can do at this point.
    So why are my fingers and toes involuntarily moving?? Something is going on, I can feel it in my body, but don't know who to turn to next!
    Thank you for responding to my post.
    A couple of questions -- who diagnosed you with Painless Legs Moving toes, was it a movement specialist or neurologist? Have your symptoms gotten better since being diagnosed? Do you still fear ALS?
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    Scrdtodth
    Hyper reflexes point more towards ALS, which I have...I think you are highly anxious but I was the same way as you! I promise!! Did you join the group?
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    Scaredmom19
    I appreciate your responses more than you know!! Thank you for listening!!

    Yes I joined the group!
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    Scrdtodth
    I sent you a PM on fbook. I think that is you.
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