ALS Support Community

A movement disorders specialist (they are neurologists that specialize in movement disorders). I have a lot of tingling sometimes, my knee spasms, etc... I even had my face moving at one time, but I think that was anxiety. There is no real treatment for it, but they are able to do a spinal cord stimulator. I have a friend who has it in Louisiana and she has a stimulator.

I no longer fear ALS now that my neurologist explained to me exactly what an EMG is testing. My primary neuro referred me to a movement specialist. Do they stop moving when you use them? That is the hallmark. You can having moving fingers, too, it just isn’t as common.

The stimulator is an experimental surgery. I live near one of the best hospitals in the country, and they will be doing surgery on another woman with it.

I have it on both feet as opposed to one now, but I do find it is worse if you are obsessed with it. I was diagnosed in March...still hard for me, but I am moving on with my life.

Yes, they stop moving when I am using them. I don't feel I have lost any strength in my hands or feet, they just feel weaker, and joints are always popping. Was this similar to your symptoms?

Thank you for your feedback. I appreciate it!

However, I have noticed lisping in my voice, when I say S's. Also my jaw moves more to the right and aches when I say my S's. I am so scared!!
I have an appt with my primary doctor tomorrow.

Yep, the feeling of having lisping, etc... went away after I realized I didn’t have ALS. My joints have popped, too. I think you probably have a form of moving extremities, painful limbs. I also believe it could go away as fast as it came.

Hey - glad you are going to movement disorders person! You will be fine. I have overactive reflexes, but many with what I have also have underactibe or absent. ALS should NOT be your worry. Search for group on Facebook PLMT and ask for permission to join. There are videos of feet on there. You are fine. Breathe. You are fine.

I have been exactly where you are. I had MRIs from the brain to the lower back. I had EMG and NCV done by best neuro in the region. I was terrified. EMG detects NERVES DYING - you have no nerves dying which is THE BEST THING POSSIBLE. You have something really annoying, but you are not dying!

I am slurring really BAD!! Went out with a friend tonight and she noticed. A coworker noticed yesterday. It’s all of my S’s.

Then after hearing there was NO reflex in my left foot where all this started, I am really scared now that this is ALS!!

I am hoping and praying it’s something treatable, and I have three young kids. This has all came on so fast. I’m just scared!

No reflex points away from ALS. You had all the tests. You are fine.