Recent content by Scrdtodth

I sent you a PM on fbook. I think that is you.

No problem; the way it presents itself can be scary (for instance, I have hyperreflexia, etc...) and you have to have things ruled out. If anyone ever has these sorts of movement disorder type symptoms, it is worth pointing to...

Hyper reflexes point more towards ALS, which I have...I think you are highly anxious but I was the same way as you! I promise!! Did you join the group?

No reflex points away from ALS. You had all the tests. You are fine.

I have been exactly where you are. I had MRIs from the brain to the lower back. I had EMG and NCV done by best neuro in the region. I was terrified. EMG detects NERVES DYING - you have no nerves dying which is THE BEST THING POSSIBLE. You have something really annoying, but you are not dying!

Hey - glad you are going to movement disorders person! You will be fine. I have overactive reflexes, but many with what I have also have underactibe or absent. ALS should NOT be your worry. Search for group on Facebook PLMT and ask for permission to join. There are videos of feet on there...

Yep, the feeling of having lisping, etc... went away after I realized I didn’t have ALS. My joints have popped, too. I think you probably have a form of moving extremities, painful limbs. I also believe it could go away as fast as it came.

I have it on both feet as opposed to one now, but I do find it is worse if you are obsessed with it. I was diagnosed in March...still hard for me, but I am moving on with my life.

The stimulator is an experimental surgery. I live near one of the best hospitals in the country, and they will be doing surgery on another woman with it.

I no longer fear ALS now that my neurologist explained to me exactly what an EMG is testing. My primary neuro referred me to a movement specialist. Do they stop moving when you use them? That is the hallmark. You can having moving fingers, too, it just isn’t as common.

A movement disorders specialist (they are neurologists that specialize in movement disorders). I have a lot of tingling sometimes, my knee spasms, etc... I even had my face moving at one time, but I think that was anxiety. There is no real treatment for it, but they are able to do a spinal...

Feel free to ask me any questions. I had hormonal upheaval at the same time I got the symptoms. I was on here freaked out, but trust me. It isn’t ALS you have.