Moving on with motor neurone disease (Poem)

Moving on with motor neurone disease My right side is gone the disease is now worse Each day I get closer to my final trip in a hearse My speech is more difficult to now understand I cannot grasp anything at all in my hand I walk with a stick cruel children they poke fun They have not a clue what life has to me done People are cruel and most simply cannot see The pain and anguish this creates within me I was as normal and able as most folk may guess But then came this disease without any redress It attacks the fit folk like sportsmen they say Attacks one and all without any warning what day Bitter against God are most folk this disease attacks Without hope of improving the disease daily stacks It stacks up daily making life every way yet worse There is no cure or plan to take, no way to rehearse Motor neurone disease eats away at your nerves In more ways it cripples folk like no one deserves It can cut a life short from just two years up to ten It attacks many women and eats too at the men Soon I’m off for a wheel chair and a hospital bed My neck is quite sore like whip lash to my head The next step is a peg feed so that I may still eat But soon I’ll not be able to get on or off a seat It attacks at bodies its disease is quite select Our hearing eyes and brain it does not effect But what use are eyes and ears to the dead We may as well be as we lie lifeless in our bed I’m fed up of seeking others to do me simple things Such is the menace that this disease clearly brings I cannot pull up a zip or turn a key in any door All the relatively easy things are not easy any more My wife is now my carer, as my rock and my aid In terrible consequences no where no rules are made When I am gone I hope no one ever cries for me But they cry for all those folk needing a cure you see Pen name Christopher Robin Copyright Registration TXu 1-598-108