Maryanner20's blog

Newly diagnosed

My husband was diagnosed with ALS Jan 2018, onset symptoms started Feb 2017. He first had cramping in right calf muscle then foot drop. His right leg started wasting away shortly after and he lost 40-50lbs within months. He began to have trouble breathing in Aug 2017 just 7 months after onset symptoms. At first he used the bipap machine only at night but now he's using it almost all day. He also uses a cough assist machine as needed. My husband can still talk and eat alone, thankfully. But he does need a lot of assistance with his basic needs.