Littletsunshine's blog

I will be straight and thankful that als was ruled out by my neurologist at Cleveland clinic... That being said she believes I have stiff person syndrome which is 1/1,000,000 dx so I am alone as my body fails and I slowly lose ability to move, breathe and function.... Sadly with great pain. I am being transferred to the CC movement disorder clinic but really no good place to find others suffering how I do. I am mostly following to learn some adaptive equipment and other options that may help.