KenMacK
New member
- Joined
- Dec 1, 2023
- Messages
- 2
- Reason
- PALS
- Diagnosis
- 11/2021
- Country
- CA
- State
- ON
- City
- Toronto
This is my first post as I only joined today. I was diagnosed in November 2021, but based on my earliest symptoms, I am 5 to 6 years in with this disease. I have the flail arm variant of ALS. My legs, voice and swallowing are all fine but my shoulders, arms and hands are quite weak. My progression has been quite slow but it is now becoming quite difficult to use my hands for many functions.
I was having trouble pushing myself up to get out of bed and so now have a fully electric hospital bed so that I can raise my upper body to help me get out of the bed. I am still able to handle the remote but feel that at some point, I will need to put in some kind of voice activation system. Does anyone have any experience with this?
I was having trouble pushing myself up to get out of bed and so now have a fully electric hospital bed so that I can raise my upper body to help me get out of the bed. I am still able to handle the remote but feel that at some point, I will need to put in some kind of voice activation system. Does anyone have any experience with this?