noh1m
New member
- Joined
- May 4, 2019
- Messages
- 7
- Reason
- Lost a loved one
- Diagnosis
- 09/2018
- Country
- US
- State
- ND
- City
- Hillsboro
I am a new member and my older brothers co-caregiver.
It was about this time last year my brother noticed his left foot would drop when walking. Mid summer the muscle twitching started. He was diagnosed in September 2018. At that time he was still able to walk, drive and work but only with the aide of a walker. He started to lose balance and had 3 or 4 falls. But the last one, in December he fell and hit his head on the concrete floor. Maybe a coincidence or not but after that fall we think his progression was accelerated. Now he can only move his head. He has a peg tube as his swallowing is difficult and a food pump that runs constantly as well as a catheter.
We have a fairly good support system in this small town but the constant care required is starting to take its toll on his wife and myself. The hardest part now is trying to find the easiest way to transfer him from his power chair to the commode chair. His neck and core muscles are weaker now and he leans to the left . We just do the best we can but I am running out of ideas to make this transferring thing work. I can only imagine what comes next.
More to come I am sure.
It was about this time last year my brother noticed his left foot would drop when walking. Mid summer the muscle twitching started. He was diagnosed in September 2018. At that time he was still able to walk, drive and work but only with the aide of a walker. He started to lose balance and had 3 or 4 falls. But the last one, in December he fell and hit his head on the concrete floor. Maybe a coincidence or not but after that fall we think his progression was accelerated. Now he can only move his head. He has a peg tube as his swallowing is difficult and a food pump that runs constantly as well as a catheter.
We have a fairly good support system in this small town but the constant care required is starting to take its toll on his wife and myself. The hardest part now is trying to find the easiest way to transfer him from his power chair to the commode chair. His neck and core muscles are weaker now and he leans to the left . We just do the best we can but I am running out of ideas to make this transferring thing work. I can only imagine what comes next.
More to come I am sure.