Signe
Active member
- Joined
- Aug 17, 2017
- Messages
- 88
- Reason
- PALS
- Diagnosis
- 04/2019
- Country
- US
- State
- IA
- City
- Lansing
Yes it is Wednesday, boy the fall has gone by fast. We're having snow showers here today and it is going to be a long winter I think. My son is improving from his infection and will be able to come home tomorrow, but still needs to have daily iv vancomycin at the local hospital.
I also have a question. Next week is my second ALS clinic appointment. At the first appointment they said it was a meet and greet appointment, though I saw several different services, speech, respiratory ect. Everyone was more just introducing themselves to me that anything else, I thought. So my question is do your neurologist and others assess you, examine you, at these appointments or just ask you questions and if you have concerns ect. This time I am having a pulmonary function test before the appointment and an overnight spirometry test. Also after the clinic appointment I agreed to having a spinal tap for a research study. Any thoughts or experiences to share, I am beginning to think that the two days and cost of hotels, meals, travel ect are a lot if they really aren't "doing anything". However, I also have a problem getting any other doctor as my local clinic will be closing Dec. 14, so I just don't know what to do for an md if I need one.
I also have a question. Next week is my second ALS clinic appointment. At the first appointment they said it was a meet and greet appointment, though I saw several different services, speech, respiratory ect. Everyone was more just introducing themselves to me that anything else, I thought. So my question is do your neurologist and others assess you, examine you, at these appointments or just ask you questions and if you have concerns ect. This time I am having a pulmonary function test before the appointment and an overnight spirometry test. Also after the clinic appointment I agreed to having a spinal tap for a research study. Any thoughts or experiences to share, I am beginning to think that the two days and cost of hotels, meals, travel ect are a lot if they really aren't "doing anything". However, I also have a problem getting any other doctor as my local clinic will be closing Dec. 14, so I just don't know what to do for an md if I need one.