Elisetoile
New member
- Joined
- May 7, 2020
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- OH
- City
- Columbus
Hi,
I asked a question about some symptoms I was having back in May. Unfortunately I’m still having some further worrisome things happening and not sure if I still need to be looking into this or if I need to go in another direction once and for all.
I have three little girls and I think a lot of my worry stems from this.
My history is widespread muscle twitching starting in March. I have had tired, fatigued jaws while eating sometimes and also some perceived speech changes with the letter “s” being awkward feeling at times, although those around me contend they hear no difference. As of a few days ago “sh” is also having a whistling sound at times and feels awkward to produce. I realize these are very subtle changes but they really concern me. The first change with the letter “s” I noticed in May. I have seen two neuros and had two clean clinical exams and had a clean EMG six weeks after twitching started but this did not include any bulbar muscles. I also realize that many with bulbar onset have clean EMG’s and the diagnosis is many times a clincial one. I guess my question is should I push for more testing or does the progression sound not likely to be something I need to worry about since it’s been three months since I first noticed the change, and explore other options like TMJ disorder or something like that. I appreciate any help you can give me.
I asked a question about some symptoms I was having back in May. Unfortunately I’m still having some further worrisome things happening and not sure if I still need to be looking into this or if I need to go in another direction once and for all.
I have three little girls and I think a lot of my worry stems from this.
My history is widespread muscle twitching starting in March. I have had tired, fatigued jaws while eating sometimes and also some perceived speech changes with the letter “s” being awkward feeling at times, although those around me contend they hear no difference. As of a few days ago “sh” is also having a whistling sound at times and feels awkward to produce. I realize these are very subtle changes but they really concern me. The first change with the letter “s” I noticed in May. I have seen two neuros and had two clean clinical exams and had a clean EMG six weeks after twitching started but this did not include any bulbar muscles. I also realize that many with bulbar onset have clean EMG’s and the diagnosis is many times a clincial one. I guess my question is should I push for more testing or does the progression sound not likely to be something I need to worry about since it’s been three months since I first noticed the change, and explore other options like TMJ disorder or something like that. I appreciate any help you can give me.