I’m nervous and I need to stop googling. This site seems safe!

[cindy78]

Left bicep started twitching last week. It has progressively gotten worse and keeps me up at night. Additionally, in the last few days probably due to my anxiety I have developed less frequent twitching on my thigh, right arm, hands, eye. I have scheduled an appointment with PCP but I’m definitely worried. No weakness, atrophy or any other changes. Just the twitching, I have read a that is one of the first symptoms so of course I’m paranoid. Need some thoughts.

 

[ShiftKicker]

Hi there-

Sorry you find yourself worried about ALS. Please make sure to read here: Read Before Posting. In it you will read that twitching absent clinical weakness can mean many many things, including nothing at all. The hallmark symptoms of ALS is clinical weakness, so what you report would not be concerning for ALS.

I am sure you will find your appointment with your gp will be reassuring. Please let us know how it goes.

 

[lgelb]

Forget whatever you think you've read -- widespread twitching without weakness, atrophy, or impairment argues strongly against ALS. The PCP can baseline your strength and reassure you. Once that happens, often you will find your own "cure" with attention to diet, stress, sleep, exercise, hydration.

 

[cindy78]

PCP: referral to neurologist

Neurologist: did clinical test and didn’t mention any concerns. Ordered bloodwork it all came back good with the exception of Aldolase. She has tested twice and it’s high each time. She wants me off some medications to try determine why that is high. I will see her again in 90 days for repeated labs. Waiting on Myositis Panel results. She sent me to physiotherapist.

Physiotherapist: conducted nerve and emg and found no issues.

I’m believing that my symptoms are something unrelated to ALS.

I trust that the test is accurate in its findings.

 

[lgelb]

Glad to hear it and that your doc is being thorough. Sounds like anything that is still on the table is more treatable than ALS.

All the best.