Thronlessrose
New member
- Joined
- Jun 19, 2025
- Messages
- 1
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- OS
I have my first appointment tomorrow with a physiotherapist to find out why my hand is suddenly getting weaker.. started about a week ago, I just noticed a moment ago my hand, the right is definitely atrophied, when I bend it forward it’s very clear.. I guess I’m glad I saw it before it’s noticed by someone else.. i suspect I have bulbar onset.. I first originally through I had COPD I’m 24..don’t smoke since I constantly have phlegm in my throat and I failed a breathing test and didn’t response to the inhaler.. I’m wondering does anyone else here suffer from tachycardia? Mine is pretty debilitating. Also my left foot is definitely weaker and stiff..wigging my toes is becoming harder and harder.. so my right hand and left foot..just my luck.
But yeah I’m honestly balling after seeing my hand..I don't have much support so I don’t know what I’m going to do when I start really declining.. my partner is excited to move into together and I don’t know how to break it to him.. I’ll have to cancel everything.. I don’t want to tell my parents because they hardly care about my health deteriorating now.. I know there mild reaction will destroy me.. I know they won’t look after me.. I’m scared I’ll be left to suffocate or dehydrate .. I guess I need to look into care homes.. I hate this reality
But yeah I’m honestly balling after seeing my hand..I don't have much support so I don’t know what I’m going to do when I start really declining.. my partner is excited to move into together and I don’t know how to break it to him.. I’ll have to cancel everything.. I don’t want to tell my parents because they hardly care about my health deteriorating now.. I know there mild reaction will destroy me.. I know they won’t look after me.. I’m scared I’ll be left to suffocate or dehydrate .. I guess I need to look into care homes.. I hate this reality