Could this ALS?

[RAY21]

could this als
Hello again. I have had widespread twitching and pain in my body since February 2023. My pain is mostly in my fingers, legs, between my index finger and thumb. I have pain on the inside and bottom of my ankle. When I sleep on my back at night, I wake up choking. When I eat or drink water, I feel like it's running into my nose. I went to the neurologist and had an EMG done. He did an EMG on two muscles in my arm, two muscles in my foot, and under my chin and under my tongue. He said it was clean. I have to clear my throat after eating, but I didn't have a risk of choking when swallowing. I took 17 tubes of blood and various MRIs, all of which were clean. I think I have muscle atrophy in my hand, but the doctor thinks there is no atrophy. Sorry to bother you. But even if I had ALS, wouldn't it progress faster in 2.5 years?

 

[lgelb]

Yes, but even more telling is where your pain is and a clean EMG.

I would ask about a sleep study. You could have problems with breathing and/or movement in sleep, which can very much affect your day.

 

[RAY21]

My pain is in my Achilles tendon, finger bones, and legs. My tongue gets heavier when I talk, and it goes away when I rest. I have twitching all over my body, even in my jaw and face. I don't know how common these are in ALS

 

[lgelb]

They're not. That was the point.

 

[RAY21]

I know you have helped a lot of people and I am grateful to all of you for that. I need your help to get answers to the questions in my mind. I am not afraid of getting sick, God willing. But these pains and twitchings drive me crazy and make me think about the disease all the time. Now I look for atrophy in my body every morning and I have started to tremble which I think is due to anxiety. I have twitching in my tongue and twitching in my whole body. Your opinions are very important to me. I apologize for taking up your time.

 

[ShiftKicker]

Please return to your doctor if you have any further questions about your health.