- Joined
- May 7, 2017
- Messages
- 1,884
- Reason
- Lost a loved one
- Diagnosis
- 05/2017
- Country
- CA
- State
- AB
- City
- CALGARY
I feel like this is a bit of a CIHALS question so I apologise in advance. We went to the clinic on the 22nd and, to our surprise, we learned that Wayne's SVC had not changed in a year. However, because this disease is cruel and wants those living with it to be sapped of all joy, the pulmonologist said Wayne sounded like he had "one drink too many". Now, I have noticed Wayne slightly slurs his words when he is not fully supported by his trilogy and when he is, his slurring stops. He has also said that at night in the past 6 months, he has awoken about 4 times from biting his cheek. So, at the clinic when he was seen by the SLP and she did a manual manipulation with his throat, cheeks, tongue and got him to swallow water and an arrowroot cookie, she saw nothing amiss. Wayne is now set to have a barium swallow test on the 7th to ascertain if anything is truly going on.
So, my questions are: Are bariums like EMGs in which they can spot muscular issues that cannot be detected upon clinical examination? Also, has any CALS noticed their PALS slur when not fully supported by their trilogy machine. I ask CALS because my husband cannot hear himself slurring.
Thanks in advance everyone
So, my questions are: Are bariums like EMGs in which they can spot muscular issues that cannot be detected upon clinical examination? Also, has any CALS noticed their PALS slur when not fully supported by their trilogy machine. I ask CALS because my husband cannot hear himself slurring.
Thanks in advance everyone