SusieQ
New member
- Joined
- Nov 21, 2020
- Messages
- 4
- Reason
- Loved one DX
- Diagnosis
- 11/2020
- Country
- US
- State
- WA
- City
- Blaine
Newbie here. My 89 yr old mother was diagnosed with Bulbar ALS about 3 weeks ago. We have no history of this disease in our family. Her symptoms made themselves known quite abruptly, and progressed from barely noticeable to significant in a very short time. She has difficulty talking and swallowing, and suffers from severe shortness of breath. Her neurologist gave her a "few months" to live. Mom has always made it clear to me that she never wanted to be hooked to machines if there was no chance of a meaningful recovery. She also has an advanced medical directive that says the same thing. I guess my question would be what sort of non-invasive measures are available to keep her comfortable when the end is near? I can't stand the thought of her going through prolonged suffering.