JimmyP
New member
- Joined
- Jan 25, 2021
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NJ
- City
- HP
Hi All,
I apologize in advance if this frustrates anyone and I genuinely from the bottom of my heart appreciate any time you take to discuss with me. I have amdmiration for all of you and wish you the best.
I also promise to not argue and fight. I read the sticky at length and it gave me some reassurance for sure, but had a couple questions after reading.
I am a married 34 year old man who just had my third child right before the new year. Shortly after he was born I felt a little weak in my legs and shoulders and (I'm a bit of a hypochondriac) immediately began worrying about that which admittedly is an admitted overreaction.
About a week after the 'weakness' I began feeling twitching in my calves which quickly became some twitches in my thighs, feet, and arms. Most predominantly in my calves but every now and then another muscle group would wake up. This sent me to a full blown panic where I saw 2 different neuros (one was neuromuscular the other general) and both were confident it was not ALS but one agreed to do an EMG for my peace of mind.
He only did the left side (feet/leg hands arm) and said it was fine and didn't need to do the right. At the time I felt like twitching was similar in both areas. I asked to do the right calf just for peace of mind and he did it. He told me he saw one fasiculation in the exam in my hamstring but it was about the 'company it keeps' and was benign. The report says 10 of 11 muscles were normal and one had 'abnormal spontaneous activity' which freaked me out but called them and they assured me the abnormal activity was the benign fasiculation.
Since then (literally the next day) i feel like twitching decreased on my left side and increased on my right. Also, had 2 days out of nowhere of my left upper back twitching very consistently basically all day, but since those 2 days it's been like 4 days and that area hasn't twitched.
The 2 things that worry me are the use of the term 'abnormal' in the report and the randomness of my back twitches, although they ceased. Also a little concerned I only did one side (left) and just the right calf on the other. While i feel weak, doctors said no clinical weakness and I'm able to go to the gym and lift/run, I just feel more sore. Also, my back started really hurting recently. Lastly, even typing makes my forearms burn a bit.
Please let me know your thoughts on the reading of the EMG (one 'abnormal' activity ie fasiculation) and if you think in your experience I should keep searching for an answer or if I am overreacting.
Thanks so much. I just have 3 very young children and it's hard for me to put this behind me.
By the way there was nothing else notable on the EMG and the report said 'essentially normal consistent with original diagnosis of BFS'.
"essentially" freaked me out a bit. But recruitment and all of the other issues were normal. Only abnormality was the one abnormal spontaneous activity. Is this not to be worried about?
I apologize in advance if this frustrates anyone and I genuinely from the bottom of my heart appreciate any time you take to discuss with me. I have amdmiration for all of you and wish you the best.
I also promise to not argue and fight. I read the sticky at length and it gave me some reassurance for sure, but had a couple questions after reading.
I am a married 34 year old man who just had my third child right before the new year. Shortly after he was born I felt a little weak in my legs and shoulders and (I'm a bit of a hypochondriac) immediately began worrying about that which admittedly is an admitted overreaction.
About a week after the 'weakness' I began feeling twitching in my calves which quickly became some twitches in my thighs, feet, and arms. Most predominantly in my calves but every now and then another muscle group would wake up. This sent me to a full blown panic where I saw 2 different neuros (one was neuromuscular the other general) and both were confident it was not ALS but one agreed to do an EMG for my peace of mind.
He only did the left side (feet/leg hands arm) and said it was fine and didn't need to do the right. At the time I felt like twitching was similar in both areas. I asked to do the right calf just for peace of mind and he did it. He told me he saw one fasiculation in the exam in my hamstring but it was about the 'company it keeps' and was benign. The report says 10 of 11 muscles were normal and one had 'abnormal spontaneous activity' which freaked me out but called them and they assured me the abnormal activity was the benign fasiculation.
Since then (literally the next day) i feel like twitching decreased on my left side and increased on my right. Also, had 2 days out of nowhere of my left upper back twitching very consistently basically all day, but since those 2 days it's been like 4 days and that area hasn't twitched.
The 2 things that worry me are the use of the term 'abnormal' in the report and the randomness of my back twitches, although they ceased. Also a little concerned I only did one side (left) and just the right calf on the other. While i feel weak, doctors said no clinical weakness and I'm able to go to the gym and lift/run, I just feel more sore. Also, my back started really hurting recently. Lastly, even typing makes my forearms burn a bit.
Please let me know your thoughts on the reading of the EMG (one 'abnormal' activity ie fasiculation) and if you think in your experience I should keep searching for an answer or if I am overreacting.
Thanks so much. I just have 3 very young children and it's hard for me to put this behind me.
By the way there was nothing else notable on the EMG and the report said 'essentially normal consistent with original diagnosis of BFS'.
"essentially" freaked me out a bit. But recruitment and all of the other issues were normal. Only abnormality was the one abnormal spontaneous activity. Is this not to be worried about?