Als?

[lgelb]

No not at the scale you're talking about, and even if it did, the EMG says not./No, because the nerves that control pain are not affected by ALS, only the nerves that control movement.

 

[Nuts]

Jeremy, you've been told over and over again that what you describe does not reflect ALS as anyone here knows it, and trust me, the people who have been answering you know ALS. By asking these questions you are asking for the same answers over and over. Please, ALS is a one way ticket. It is frustrating to have symptoms that you don't know the cause of, but since ALS is a death sentence, please be grateful that it is off the table. One bit of advice--don't tell your doctors that you think you have ALS. Seriously, give them the symptoms, tell them how desperate you are, and let them test and diagnose. Best of luck to you--I do hope that you find some answers soon, but you really are not going to find any other answer here other than what you have already received.

 

[wishmobbing]

I’m completely 10000 million % believe it’s als

Since you don't believe doctors and can't be reassured by the good people here, I won't try to convince you step by step.

what do you all think?

Okay, i'll tell you what I think. I completely 10000 million % believe it's NOT ALS.

 

[Jeremy90]

My neurologist says no evidence of als but then says it could point to motor neurons disease but that mostly als to right? I will post what she said with tests results if y’all could help me understand it more thanks

 

[Nikki J]

Where does it say that? The summary says no electro diagnostic evidence of…….or motor neuron disease. Nor do your messages with Dr H suggest it
she says you may have a mildly pinched nerve in your back and that you have some hyperexcitable nerves that are causing twitching and cramping. This is not a sign of ALS or anything bad at all. She wants you to exercise even if it is just walking to start and to do an elimination diet which I expect she discussed or gave a resource. There is one medicine she said you could try for symptoms but she left it up to you. Your choice but I would try other things first as meds have side effects. She said no ALS and no MS

 

[Jeremy90]

It says on the comment, more, myopathy,are,motor neuron disease, idk if it was typo, and I haven’t done anything ,to get pinched nerve ,so don’t understand that ,I know I have lot of neck and back pain like aches ,and isn’t hyperexcitable signs it’s progressing ,into als/mnd?? And another thing, is my symptoms ,isn’t improving ,could it be to early for emg to pick up ,als I’m sure y’all know my symptoms ,by now since I put them in previously comment ,definitely not hoping for this disease, and What does + mean on muaps ,of the emg ?test and also sme on the recruit ,part ?

 

[lgelb]

Yes, there is a typo. "More myopathy" should have been "motor neuropathy." The perils of dictation.

A radiculopathy doesn't have to be the result of an injury, just wear and tear. As you can see from the note, no one is excited about mild hyperexcitability. The EMG is no worse than eight years ago, from their reading, which is a long time. So the EMG can hardly be too early. PNHS, which is what they think you have, will not disable you like ALS does. But it's not going to suddenly get better, though PT and maybe muscle relaxants may help, and there may be autoimmunity-related treatments in the future. Look it up.

The big news remains -- you don't have ALS or anything like it.

Jeremy, you've gotten great news and though you're still not a believer, we've done all we can here. We encourage you to circle back to your neuro with further questions about what you have and what to do next. I am closing this thread. Please do not start another.

Best,
Laurie