- Joined
- Jun 6, 2024
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- ME
Hi guys, I’ll try and keep this brief. Paternal grandfather had ALS, and two years ago my paternal uncle passed from fronto-temporal dementia/ALS. Uncle has a positive gene marker (can’t totally remember..Cs9?). Grandfather never did genetic testing. Nobody else in the family is testing.
About a year ago I was noticing discomfort while driving in my right foot going into my shin. Picking foot up off gas pedal wasn’t hard per se, but it caused a decent amount of discomfort, if not pain. I was also noticing discomfort of varying kinds in my lower back right above my glute. The discomfort only one time do I remember ever becoming “searing” but it tends to increase while sitting and driving. I also noticed then that when sitting with feet up like on a bed, my right foot would hang slightlyyy lower than my left. The right side of my right foot tends to get tingly and discomfort and I’ve had varying degree of pain around my ankle when it’s being used/overused. Same with the right/outside side of my knee. Also my second toe in from the right side seems to have some numbness/ lessened sensation compared to other toes and the corresponding toe on my left foot.
I don’t think it’s any worse than a year ago (hard to tell. Certainly nothing drastic) and I’m not tripping or losing balance and nothing has spread to any other limbs in the last year. And no real twitching or spasms in the limb.
There’s more I can say about my “symptoms” and would be happy to go into more detail if asked. But ive been really stressed ever since my uncle was diagnosed and kind of wanted to see what you guys think. And yes ive scheduled an appointment with my primary dr in the hopes of getting a referral in case it (hopefully) is a pinched/compressed nerve or something of that ilk. Thanks for the input.
About a year ago I was noticing discomfort while driving in my right foot going into my shin. Picking foot up off gas pedal wasn’t hard per se, but it caused a decent amount of discomfort, if not pain. I was also noticing discomfort of varying kinds in my lower back right above my glute. The discomfort only one time do I remember ever becoming “searing” but it tends to increase while sitting and driving. I also noticed then that when sitting with feet up like on a bed, my right foot would hang slightlyyy lower than my left. The right side of my right foot tends to get tingly and discomfort and I’ve had varying degree of pain around my ankle when it’s being used/overused. Same with the right/outside side of my knee. Also my second toe in from the right side seems to have some numbness/ lessened sensation compared to other toes and the corresponding toe on my left foot.
I don’t think it’s any worse than a year ago (hard to tell. Certainly nothing drastic) and I’m not tripping or losing balance and nothing has spread to any other limbs in the last year. And no real twitching or spasms in the limb.
There’s more I can say about my “symptoms” and would be happy to go into more detail if asked. But ive been really stressed ever since my uncle was diagnosed and kind of wanted to see what you guys think. And yes ive scheduled an appointment with my primary dr in the hopes of getting a referral in case it (hopefully) is a pinched/compressed nerve or something of that ilk. Thanks for the input.