swallowing

  1. R

    Advice about EMG result

    Hi everyone. First time poster, I first want to thank all of you for what you do on this site. Truly inspirational. I will be brief. My symptoms are twitches mostly in left calf ( about a month now) but sporadically other places ( all over). I have no clinical weakness that I can discern...
  2. S

    Very Concerned about Bulbar

    Thank you to anyone taking the time to read this and giving me your thoughts and insight. Please know that it is truly appreciated. I have read the stickies, but still have some questions. I am a 40 year old male. I began with a twitch in my left bicep in early December 2018, but the...
  3. K

    17 year old male fast progressing als symptoms

    hello everyone, first and foremost i want to say that to all of you living with als, you guys are an inspiration and you guys are all warriors, i mean no disrespect by this post just treally concerned and any bit of answers would help a lot! so the last 2 months i have just constantly been...
  4. R

    Worried I may have ALS , scared beyond belief , no one to talk to

    Hello everyone , thank u for taking time to read my post , any and all feed back is greatly appreciated , and for all of u suffering with ALS I pray for u all and am starting a campaign to raise and donate money for ALS ! Ok so here is my story , for the past 2-3 years I have suffered with what...
  5. T

    Where to Go From Here

    Hello. My husband was diagnosed ALS May 24, 2018 at age 43. It all began in April 2017 when he began having difficulty clipping his nails, left hand onset first. From there it was over a year of testing, specialist, etc, which is the only normal thing I guess about this disease; difficult to...
  6. B

    Question

    Hi im a 29 year old male my story starts with one day in may 2018 i notice twitching in my calves then few weeks notice them in my arms , scalp, tounge, and eyelid not constant maybe a few pops Over time my right leg felt stiff , felt like it would buckle and heavy feeling also if i would rub...
  7. A

    I have to rule out ALS

    My story starts in Feb 2018. During an xray for shoulder pain they discovered my left diaphragm was elevated, but they didn't bother to tell me. They gave me painkillers for shoulder bursitis. I complained to my PCP in Sep 20108 of constipation. She ordered an abdominal CT scan that showed...
  8. K

    Optimal living situation- financially, emotionally, spiritually etc

    My pALS is my mom. She is newly diagnosed with bulbar onset ALS. As of now her mobility is not impacted too much, just her speech, swallowing and breathing. We have been discussing living arrangements as her mobility and breathing decline. Other pALS out there, what did you decide? Did you...
  9. C

    6 months in, new symptoms

    I posted to this forum a few months ago after my symptoms started. At that time I had neck stiffness and pain, body wide twitching but constant in my lower legs and some swallowing problems. Symptoms have come and gone over the past 3 months. My neck pain and stiffness dissipated. My...
  10. J

    Brainstorm Nurown 'Right to Try' participant shares progress

    As some of you may know, Brainstorm granted one PALS free access to NurOwn as a 'thank you' for the work he did on Right to Try. He is not in a trial but is being given the course separately. His update is on Facebook -- matt.bellinski.7 Mod note -- not linking directly due to fundraising...
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