In 2012 fasciculations started. I also have pin and needles and some other little things. Went to the neurologist, he did some tests and diagnosed me with BFS. Slowly my worries disappeared and I went on with my live. I'm 42 years old now and a mum of 4 kids.
But... since 2014 I got some...
Finally, here.
I have been a longtime lurker. I have been tempted to ask questions, but ultimately I decided to wait. And I waited for a long time. Having been finally diagnosed, I will let you know how everything began.
In the spring of 2016, I started noticing some problems with my left...
Hello!
My heart goes out to anyone with this horrifying disease. Nobody deserves it.
I have read the sticky in this forum and have been unsure wether I should post, but my anxiety about this disease is severe. I figure I should seek the advice of people who actually have this disease and...
I’m concerned about my symptoms I’ve been facing them for just under 6 months.
Let me start out by saying that my life is very stressful. I manage about 500 people all over the world. The ups and downs of corporate politics are very impactful and my stress level in the last 6 months has been...
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Hello, and first of all, I wish you all the best you can all get for 2019 including love and peace in your souls.
I posted here a few weeks ago, as I was concerned with a myriad of Symptomes including feeling of weakness in arm and one leg, beginning of fasciculations, a number of sensory...
Hello to all,
I am new to this group and would love some information and perspective on people who have seen this terrible disease first hand.
I am posting for my mother who is 58 years old and experiencing an array of symptoms and problems for about 5+ months now.
This all started back in...
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Hi, I apologize for being back but the drs. can’t get to the root of my issues and keep telling me to go back to the neurologist. The Neuros keep saying come back in 6 months. My last visit drs thought I had celiac but now it turns out that was not the issue.
Couple of questions if you don’t...
Hi
Can anyone help ?
My husband 65 years young, (ex Indian Navy), physically very active till diagnosed and even after, has pseudo bulbar palsy. Diagnosed May 2017. The last couple of months he has lower limb weakness- uses a walker. Is on Edaravone and Rilutor.
Of late he has thick phlegm...
First off, thanks to everyone on these forums. I have been visiting a bit as I'm quite convinced my girlfriend of 10 years has developed this terrible disease.
A year ago today we were on our snowmobiles in northern Maine... it seems impossible that we are where we are right now.
Sharon...
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Good afternoon,
My name is Chris and I am a 29 year old male. For the last 4 months the sides of my tongue have quivered non-stop. The best way to describe it is as if the sides of my tongue move left and right at an incredibly rapid pace while the middle maintains it's placement. I can not...