swallowing

  1. G

    Not sure what's going on

    Hi everyone, First of all just want to say thank you for what you guys do and provide everyone on this site. I'm so sorry for anyone who is impacted by this disease in any way. I've read the sticky portion which was reassuring, but I'm still freaking out. Let me explain.. Around thanksgiving I...
  2. L

    Question about Bulbar

    I really didn't want to post on here because I know those confirmed with this horrific disease have alot more on their plate. But I also recognize it is a great resource with alot of Knowledgeable people. A little about me, 42/m very active and big into fitness and bodybuilding most my life...
  3. K

    Slow or fast progression?

    Hi All, My dad was officially diagnosed with als in March 2018 although he was exhibiting signs as early as May 2017. I remember going to the neurologist for the diagnosis and my dad walked there. Slowly but he walked. Now he can barely walk in a walker. His left side is much stronger than his...
  4. B

    Concerned about ALS

    (Sorry i first posted it by error in the general feed) Hello everyone, first of all thank you for everyone contributing to this forum because I find it quite helpful to read about individual experiences. I am writing here as I have been experiencing different health problems for a while...
  5. H

    Very scared - seems more like ALS each day

    Hi All, First I wanted to say thank you to all of the folks who take the time to read these posts and share their opinions. I've been reading on these forums for a little while now and figured it was finally time to share my concerns... Before I go into detail about my story, I'll quickly...
  6. blitzc

    Difficulty eating full meal- why?

    I find myself at almost every meal hungry but unable to finish what I am eating. There aren't any swallowing issues, just an inability to keep eating, feeling tired, fullness, bloating, difficulty breating, and a general lack of excitement for the meal. My hands make it difficult to cut food or...
  7. I

    Drugs and PT for PBP?

    I was diagnosed with PBP a year ago this week. I frequently check in and read most of the posts for the day. It just dawned on my husband and I that none of the four neurologists I have seen have mentioned physical therapy or drugs that might delay the progression of this beast. Until about...
  8. N

    Does this sound like bulbar onset?

    Earlier this week whilst driving my car I started whistling along to a song and not much sound was coming out, this is strange because i normally have a very strong whistle. I got worried and panicked a bit. Fast forward to this morning, I tried to get my dogs attention and went to make that...
  9. T

    Getting Help, Caregivers

    We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas. For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...
  10. B

    Very scared abt Bulbar Onset, plz help

    I would like to thank all of you in advance for reading my concerns. I am 39 yeasr old male. It all started in july last year. Initially i was suffering from burning pain in my arms and legs. I went to a dibatologists. But my sugar level came normal. Then I went to a neurologist. He adviced some...
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